I’ve just heard back from the Cleveland Clinic, in regards to Gavin’s worsening Autonomic stability. We’ve officially run out of options there. Our specialist has done everything he can possibly do and we are to proceed to the Mayo Clinic.
The Mayo Clinic is located in Florida, Minnesota and Arizona.
We can’t fly because Gavin would never survive that. Our only option is to drive but that wouldn’t be good for him either. This is an unbelievably frustrating catch 22.
I’ve put in an appointment request and should hear something back by Monday or Tuesday.
When I put the request in for an appointment, I did so for the Minnesota location because that’s the closest. While it’s closest, it’s still several states over. I don’t know how we’re gonna pull this one off.
I’m so close to just breaking down right now because I’m so completely overwhelmed and I don’t know what to do…. This would be the farthest we’ve ever gone to persue Gavin’s health problems and there’s no guarantee that they will be able to help.
There’s also insurance, money and the simple logistics of a trip like this that may never fall into the same rhelm as practicality. We don’t even own a car anymore……
I feel sick to my stomach right now……..
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