Read more about the article We have a day filled with absolutely nothing and I love it
My Opinion

We have a day filled with absolutely nothing and I love it

Today is the first day this week that we have absolutely nothing to do.  This will work out just fine because I'm sure the boys and in truth, Lizze and I as well, will need the day to decompress from a rather chaotic week. I plan on doing some writing and maybe taking the boys Pokémon hunting. The whole point is that we're shooting for low key and stress free. Who knows if that's even possible but that's certainly the goal..  ☺

0 Comments
July 28, 2016
Read more about the article The crew from @vivintgivesback flew out to spend the day with the @the_autism_dad family and it was awesome
Gallery / My thoughts / Today's Victory / Vivint Gives Back

The crew from @vivintgivesback flew out to spend the day with the @the_autism_dad family and it was awesome

Today was amazing.  For those tardy to the party, the crew from Vivint Gives Back, flew all the way from Utah to spend the day with my family. There was a great deal of stress and anxiety leading up to this, simply because trying to get the house presentable can present many challenges.  I don't need to explain that to many of you because you face many of the same daily challenges we do. The team from Vivint arrived on time and our day was soon underway. To put things simply, they were here to film a documentary or sorts, featuring both myself and my family.  This was done for a few reasons, but the biggest and most important were to raise awareness for Autism, as well as for the…

8 Comments
July 28, 2016
Read more about the article The moment has finally arrived
My thoughts

The moment has finally arrived

The moment has almost arrived and I think we are finally ready for Vivint to come to our house.  I'm way more nervous that I probably should be and to be completely honest, I'm going on about 2 hours of sleep. Everyone is dressed and in a good mood.  That in and of itself is a massive blessing. I'll let you know of how it goes and we'll probably have lots of pictures to share.  Wish us luck.....  ☺

0 Comments
July 27, 2016
Read more about the article We made some awesome progress today
General Update

We made some awesome progress today

We've spent the majority of the day so far, cleaning and straighting up. My Mom came over to help and I think we're pretty much done.  There's a few things left to do but nothing major. Gavin's slept for most of the afternoon thus far.  That's a bit strange and makes me wonder if he's sleeping well at night.  Normally he'll take a nap for about an hour or so after taking his morning meds but today he was out for several hours. I'll have to go back and check my alerts to see how many times he got up last night. I know of several times for sure but he seemed to go right back to bed. Anyway, he slept for awhile today. Emmett spent hours and hours just…

6 Comments
July 26, 2016
Read more about the article We have a very serious decision to make
Clozapine Crisis / Gavin / Psychotic Episode / Schizoaffective Disorder

We have a very serious decision to make

I heard back from Gavin's psychiatrist today and we have a very, very difficult decision to make, in regards to Gavin's current psychotic break.  Dr. Reynolds explained that we can increase Gavin's Clozapine dose back up to 800mg a day, if we feel he's that bad or that far gone.  He's currently on 600mg/day right now because when we had to start over the last time, we stopped when we reached 600mg/day.  It seemed to be working at the lower dose and because the danger inherent to this medication, if it worked at the lower dose, we were better off stopping there.  Bumping him up to 800mg/day would put him back where he was before we started over.  We had to get special approval to have him in the 800mg/day…

0 Comments
July 26, 2016
Read more about the article You know it’s bad when your child’s meltdown sets off the alarm
Emmett John / Meltdowns / My thoughts

You know it’s bad when your child’s meltdown sets off the alarm

This morning has been filled with screaming.  In fact, it's been so bad that it's actually setting off the glass break sensors in the house, triggering an alarm.. Emmett's spent the morning, melting down over any and every conceivable thing.  As I suggested in last night's post, there's going to be quite a bit of fallout from yesterday's trip to the dentist. At the moment, I'm snuggling on the couch with Mr. Emmett, under a really heavy weighted blanket. I'm hoping that this will help Emmett to experience some sensory input that will provide him with enough comfort to reduce the stress and anxiety, that's built up from yesterday.  His meltdowns have been so loud and so high pitched that he's set of the glass break sensors throughout the house.…

0 Comments
July 26, 2016
Read more about the article Today was pretty horrible but we lived to tell about it
General Update / My thoughts

Today was pretty horrible but we lived to tell about it

Today has been such a long, both emotionally and physically draining day. Before and after Emmett's emergency dental appointment, I didn't see much of Gavin.  He spent most of his free time in his room. The only time he really spent time amongst his family was after dinner, while he was receiving his IVIG infusion. When he gets his infusion, he likes to sit in the same exact spot and practice the exact same routine.  If anything shakes up that routine, he panics and for that reason, we do our best to ensure everything stays as close to the same each time he gets his infusion. Poor Emmett has been so tired after his dental procedure today. He fell asleep in the car on the way home and has been…

0 Comments
July 26, 2016