My thoughts

Today’s Victory: Taking care of ourselves

Everyday I want to try and celebrate something positive that occurred. It's important to me that I not get swallowed up by all the shit in our lives. It's also important that I present both sides of Autism parenting.  There are days that truly suck and I'd love nothing more than to board the Crazy Train with a one way ticket to I don't care where.  At the same time, there are also moments where I'm reminded how truly blessed I am to have my kids. It's these moments that I live for because they help me find the strength to keep on keeping on, especially on the bad days.  With that in mind, here's what I'm celebrating today.   The boys went to spend some time with my amazing…

0 Comments
September 26, 2016
My Crazy Neighborhood

It’s not been a good day in our neighborhood 

The boys are spending the day with their Grandparents. It's not been a good day in our neighborhood and I'm glad the kids are able to get away and enjoy the weather in a safe place.  I'm reminded of just how badly we need to move but can't... 😕 It's frustrating and one of those things that always sits in the back of my mind. Days like today allow it to bubble to the surface... 

3 Comments
September 25, 2016
Emmett John / My thoughts / Sensory

Today has been a sensory nightmare for my family 

We've all heard the phrase if Mama ain't happy ain't nobody happy.. In our case it's a bit different because it goes if Emmett ain't happy ain't nobody happy.  Today was a day where Emmett really, really struggled.  Everything surrounding food was tough for him and navigating through the day, while coexisting with his brothers proved very trying.  All the boys need to be able to play outside. There's a great deal of sensory input that can be had from crashing and bashing around the yard.  Unfortunately, where we live, it's just not something we can let them do and that breaks my heart.  Anyway, Emmett was like a very tightly wound spring, all day long. He was like a cat getting ready to pounce on something. There's that moment…

0 Comments
September 25, 2016
Inspirational Posts / My thoughts / Reference Post

Why it’s so hard to keep my kids with #Autism and #SPD fed

This issomething I've been meaning to talk about but haven't gotten around to it. I know many of you parenting kids with Autism and or sensory processing disorder will be able to relate to this.  I'm talking about how difficult it can be to feed my kids.  This is one of those things that unless you're experiencing it, it's extremely difficult to wrap your head around because instinct tells us that if the child is really hungry, they'll eat. In more typical cases, that may apply but in cases of Autism and SPD, this does not apply.  When it comes to my family, there are numerous reasons why feeding my kids is very difficult to do.  These reasons are all intertwined, tangled and knotted up together. It's very challenging to…

15 Comments
September 24, 2016
Read more about the article Depending on what you consider early, I think the kids slept in this morning 
My thoughts

Depending on what you consider early, I think the kids slept in this morning 

If you consider 7am sleeping in, than the boys slept in this morning.  ☺  This is a very good thing for Elliott because he's been struggling to the stay asleep for the last week or so. The poor kid needed some sleep.  Gavin was briefly awake before going back to bed himself. He may still be a little under the weather from his IVIG infusion last night. Hopefully, he'll rest for a little bit and be back to driving me crazy with his incessant talking in a little bit.  lol I let Lizze sleep in this morning and I've been hanging out with the boys playing Minecraft.  While I'm feeling drained, I'm also in a really good mood.  ☺  There's a small chance the boys will be going to their…

0 Comments
September 24, 2016
Read more about the article Today’s Victory: The Bravest Kid I Know
Gavin

Today’s Victory: The Bravest Kid I Know

I want to give recognition to Gavin and award him with a Today's Victory.  Gavin's 16 years old and has already lived through more than most people do in a lifetime. He lives with truly freak medical and mental health conditions. By freak I'm simply referring to how astronomically rare they are.   No matter what he goes through, he does so with a smile on his face and never once complains.  His life is profoundly impacted by his health and yet he's always asking what he can do to help around the house.  Gavin's such an inspiration to me as both a father and human being.   It's for this and many more reasons that he deserves to have the spotlight on him because he's easiest the bravest kid I've…

0 Comments
September 24, 2016
Read more about the article What my son asked me tonight broke my heart 
Autism Parenting Woes / Gavin / My thoughts

What my son asked me tonight broke my heart 

There are times when I really hate being me. In order to do what's best for my kids, sometimes I have to cause them pain.  For the very first time in all the many years that Gavin has been receiving IVIG, he made a request of me that absolutely broke my heart. Before Gavin received his IVIG infusion tonight, he said this: Dad, when you put the needles in my belly today, can please make it not hurt...  Do you know how crushing that is to hear? 😢 I would do anything to not have to cause him this pain but it's causing this pain that keeps him alive... 

0 Comments
September 24, 2016