The good news and bad news about Gavin’s eyes



Aside from the ridiculous wait times at the doctors, Gavin eye appointment when well. The good news is, Gavin’s eyes check out perfectly healthy. The bad news is, we have no idea what’s causing the vision blackouts. 

Again, it’s awesome that his eyes checked out. I’m certainly grateful for that, please don’t misunderstand. At the same time, he’s having problems with his vision that isn’t related to his eyes. 

WTF are we supposed to do with that? 



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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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Jimmy Rock
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Jimmy Rock

Glad everything checked out. But along those lines, how do you know Gavin is experiencing vision blackouts? As you’ve said, he’s not exactly the greatest reporter of his own symptoms/health. How is he explaining it to you? Or is it possible that he’s hallucinating?
Just wondering where you go from here when it appears everything checks out and you’re stuck relying solely on his word. Or have you actually seen the effects these blackouts have on him in the moment?
Sorry if I missed a post where you explained any or all of this…

Rob Gorski
Admin

Thanks Jimmy. Ya know, that’s a good question. You’re right, all we have to go on is what he’s telling us. I don’t think he’s making it up, not that you were suggesting that. We do have to somewhat rely on what he tells us. I’ve been present when he’s claimed this has happened, but without seeing through his eyes, I can only go by what he says. He does tells us when it happens, at least most of the time. When this happens, he just can’t see anything for maybe 10 seconds. To my knowledge, he hasn’t fallen down… Read more »

Jimmy Rock
Guest
Jimmy Rock

Thanks for understanding what I was getting at and thanks for the response. It’s a tricky situation, I hope you can get some resolution.

Rob Gorski
Admin

No problem. That’s part of what makes everything so challenging. So many of these things are subjective and he’s just not able to always accurately discribe what’s going on.

That’s simply the reality of the situation..

Jimmy Rock
Guest
Jimmy Rock

Glad everything checked out. But along those lines, how do you know Gavin is experiencing vision blackouts? As you’ve said, he’s not exactly the greatest reporter of his own symptoms/health. How is he explaining it to you? Or is it possible that he’s hallucinating?
Just wondering where you go from here when it appears everything checks out and you’re stuck relying solely on his word. Or have you actually seen the effects these blackouts have on him in the moment?
Sorry if I missed a post where you explained any or all of this…

Rob Gorski
Admin

Thanks Jimmy. Ya know, that’s a good question. You’re right, all we have to go on is what he’s telling us. I don’t think he’s making it up, not that you were suggesting that. We do have to somewhat rely on what he tells us. I’ve been present when he’s claimed this has happened, but without seeing through his eyes, I can only go by what he says. He does tells us when it happens, at least most of the time. When this happens, he just can’t see anything for maybe 10 seconds. To my knowledge, he hasn’t fallen down… Read more »

Jimmy Rock
Guest
Jimmy Rock

Thanks for understanding what I was getting at and thanks for the response. It’s a tricky situation, I hope you can get some resolution.

Rob Gorski
Admin

No problem. That’s part of what makes everything so challenging. So many of these things are subjective and he’s just not able to always accurately discribe what’s going on.

That’s simply the reality of the situation..

BeckyW
Member
BeckyW

Could Gavin be having an aural migraine? That is when the vision dims/blacks out and can also see things like lights on the edge of the vision. I have had those in the past. They can come without any migraine pain although you can also just have the blackout.

I know about these because I have them. Not often as I did, but enough. Anyway, just a piece of info, do with it what you will. 🙂

Rob Gorski
Admin

I hadn’t thought of that. He never complains of pain so it never occurred to me.

BeckyW
Member
BeckyW

Right. They can come without pain. I saw an optometrist and that is what he told me. So Gavin could have an aural migraine without pain. It’s just a suggestion I’m throwing out there since no one has figured it out yet.

It’s weirder to have one with no pain. At least the pain clues you into what is going on.

Rob Gorski
Admin

I hadn’t thought of that. He never complains of pain so it never occurred to me.

BeckyW
Member
BeckyW

Right. They can come without pain. I saw an optometrist and that is what he told me. So Gavin could have an aural migraine without pain. It’s just a suggestion I’m throwing out there since no one has figured it out yet.

It’s weirder to have one with no pain. At least the pain clues you into what is going on.

BeckyW
Member
BeckyW

Could Gavin be having an aural migraine? That is when the vision dims/blacks out and can also see things like lights on the edge of the vision. I have had those in the past. They can come without any migraine pain although you can also just have the blackout.

I know about these because I have them. Not often as I did, but enough. Anyway, just a piece of info, do with it what you will. 🙂

Rob Gorski
Admin

I hadn’t thought of that. He never complains of pain so it never occurred to me.

BeckyW
Member
BeckyW

Right. They can come without pain. I saw an optometrist and that is what he told me. So Gavin could have an aural migraine without pain. It’s just a suggestion I’m throwing out there since no one has figured it out yet.

It’s weirder to have one with no pain. At least the pain clues you into what is going on.

Rob Gorski
Admin

I hadn’t thought of that. He never complains of pain so it never occurred to me.

BeckyW
Member
BeckyW

Right. They can come without pain. I saw an optometrist and that is what he told me. So Gavin could have an aural migraine without pain. It’s just a suggestion I’m throwing out there since no one has figured it out yet.

It’s weirder to have one with no pain. At least the pain clues you into what is going on.