My 11 Year Old Talks About Life On Lockdown (Feat Emmett Gorski) S3E10

In this weeks (albeit late) episode, I talk about life on lockdown and what it’s like to manage this COVID19 health crisis as a single Dad to 3 Autistic kids. Gavin, (my oldest) is immunocompromised and I have to walk a very, very fine line in order to keep him safe. It’s not easy by any stretch of the imagination but we’re muddling through.

Later in the episode, Emmett, my 11-year-old, joins me to discuss how this whole lockdown is impacting him. He does an amazing job of expressing his thought on our current situation. He was very fidgety, and that fidgeting was picked up by the microphone. I cleaned it up as best I could and I’m excited for you to hear Emmett’s point of view on this. 🙂

I wanted to provide you with a list of reliable sources for information regarding COVID19. Facts, science medicine and accurate, truthful information matters now more than ever. These are some of the people and medical facilities that I trust and rely on for information about this pandemic. Please give them a follow.

Dr. Tara C. Smith

Professor, infectious disease epidemiologist

Twitter: twitter.com/aetiology

Website: aracsmith.com

Cleveland Clinic

Twitter: twitter.com/clevelandclinic

Website: clevelandclinic.org

Mayo Clinic

Twitter:twitter.com/mayoclinic

Website: mayoclinic.org

CDC

Twitter: twitter.com/cdcgov

Website: cdc.gov

Support This Podcast

You can find me: theautismdad.com

Twitter: https://twitter.com/theautismdad

This episode is sponsored by Mightier. Mightier is an amazing program out of Harvard Medical and Boston Children’s. It uses video games to teach kids to emotionally self-regulate. Visit theautismdad.com/mightier and find out more information, including how to get a free 30 day trial.

This episode is brought to you by Probably Genetic. Probably Genetics is helping me with my oldest, who suffers from multiple rare genetic diseases. Probably Genetic is helping me to find the answers to questions that have long gone unanswered. Probably Genetic specializes in identifying rare genetic diseases that often go undiagnosed, especially in children already diagnosed with Autism. They are on a mission to make full genetic sequencing accessible to those who need it. They significantly reduced the cost and drastically reduced the wait time as well. If you are one of the countless people in need of genetic testing, please visit probablygenetic.com to find out more and use the discount code “theautismdad400” to get $400 off. If you already had a whole exome or whole genome test done but didn’t get an answer, they can re-analyze your existing data. If you don’t have the data available, they’ll help you get it from your lab free of charge. You can join their re-analysis waitlist at https://www.probablygenetic.com/waitlist.html.”

Please take a minute and answer a few survey questions. This helps Probably Genetic better understand how best to help families like mine. Click Here

This episode is brought to you by AngelSense. Wandering is a huge problem in the Autism community and it’s reached epidemic levels. AngelSense is working to save the lives of Autistic kids who wander, by empowering parents with GPS tracking tools that helps them to immediately intervene should an episode of elopement occur. Visit angelsense.com for more information.

8 comments

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    • Camille reyes on April 24, 2020 at 11:08 am
    • Reply

    Mr rob my name is Camille reyes and I’m a single mom to a 3 year old boy and since he was diagnosed a lil over a year ago I been raping my head around how to help him and help other families parents like me.
    I saw you on Taren hall show this morning and I was just amazed
    With ur courage, strength, and loyalty to parenting please I have some ideas that I would love to get ur opinion, advice and partnership if possible. my email is (address removed by admin to protect privacy) please when ever you have a chance please contact me or let me know how I can contact you and join your autism chat community please take great care of yourself and them beautiful young men you are raising. I am extremely proud of you you can do this

    • Miriam Trujillo on April 24, 2020 at 11:05 am
    • Reply

    Hello Rob and God bless your Sons, you’re doing an amazing job with your kids, you’re their heroe. I’m totally new to autism. My son 27 yrs old was diagnosed last year and with covid 19 he has withdraw spending 21 hrs of the day in his room, in his laptop or video games. He comes out for meals and shower. Unfortunately because of this crisis his job closed until further notice. He’s a great and respectful son. I’m not sure what can I do from my part to get him out of the house for at least 30 minutes.I just saw you with Robin and Tamram Hall your story is very impressive and moving.

  1. For those worried about the extension of the lockdown, here’s a post my dad wrote about how to continue with therapy in times of COVID-19 that includes resources for online therapy on different kinds of autism therapies as well as therapy for autism in Spanish, hope you can share 🙂

    https://medium.com/@fdevin/virtual-therapies-for-autism-during-covid-19-days-9e99b939eae2

    1. Thanks Sofi… ☺

    • BJW on March 25, 2020 at 1:10 am
    • Reply

    I enjoyed this episode and Emmett did very well. Hope to hear from him again.

    • Curtis G. on March 23, 2020 at 8:55 pm
    • Reply

    Great podcast! Very informative good advice and enjoyable, even in these frightening times. Emmett is so extremely bright and his comments were right on. A very intelligent young man. Kudos to you both.

    • dotdash on March 23, 2020 at 4:03 pm
    • Reply

    Are you SURE you have thought of all the possible ways of getting his blood work done? Surely the lab can send someone out to the car to take his blood in the parking lot. That’s not a huge ask. Taking him off the clozapine sounds like a sure disaster (as opposed to the possible risk of getting his blood drawn). Why choose the sure loss over the possible loss?

    1. Hey Dot. It’s because off the meds he’ll be annoying but healthy. Staying on the meds requires blood work that exposes him to other people who may be infected but asymptomatic. The downside of that is potentially much worse than annoyance. I have to assume that everyone’s infected and that means any exposure is risky. Normally Gavin’s infusion won’t protect him from COVID19 because it’s too new.

      We’re doing what’s best for him, so far as we can see. This eliminates many unknowns. I know what I’ll be dealing with if he goes off the meds and I’m prepared to deal with that. I’m not suggesting it’s going to be easy, but it’s the lesser of 2 evils.

      Does that make sense?

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