It's been an exhausting day, full of repetitive questions, meltdowns and schizophrenic hallucinations. We also had a pretty awesome victory. The Good news first... Emmett graduated from his Functional Independence Group after 6 weeks and I'm so proud of him.  I'm also very grateful that he was given the opportunity to attend this awesome pilot program by Akron Children's Hospital. That's pretty much where the good news end because the rest is a mixed bag of good, bad and ugly. The rest of the day was spent listening to Gavin talk about his latest missions with his visibly challenged group of super best friends.  It's not that I don't want to listen to him but it's really hard to hear this because it's a massive reminder of how serious his mental…

Today has been such a long, both emotionally and physically draining day. Before and after Emmett's emergency dental appointment, I didn't see much of Gavin.  He spent most of his free time in his room. The only time he really spent time amongst his family was after dinner, while he was receiving his IVIG infusion. When he gets his infusion, he likes to sit in the same exact spot and practice the exact same routine.  If anything shakes up that routine, he panics and for that reason, we do our best to ensure everything stays as close to the same each time he gets his infusion. Poor Emmett has been so tired after his dental procedure today. He fell asleep in the car on the way home and has been…