Category: IVIG Infusion

Please keep Gavin in your thoughts and prayers

Please keep Gavin in your thoughts and prayers this morning.  He’s about to begin his second IVIG infusion at the new infusion site.  For the second time, he will have the needles placed into his thighs instead of his belly.  While the site is numb,  it’s a very uncomfortable process and it took about 3 …

Continue reading

Gavin’s spent 3 hours with needles in his leg

Admittedly,  I’m a bit overwhelmed and preoccupied with this whole Childhood Disintegrative Disorder thing.  Some of you have been asking about Gavin IVIG infusion yesterday because I hadn’t yet spoken about how the new infusion site went. So here’s the deal… Let me start off by saying that Gavin is the bravest kid I’ve ever …

Continue reading

I have some good news and some bad news

This is a good news/bad news post because there is good news and some bad news.  I’m going to begin with the bad news because it will make the good news make more sense.  I shared earlier in the week that Gavin’s IVIG Infusions haven’t been going well.  In an attempt to counter this issue, …

Continue reading

My heart is breaking for Gavin

Poor Gavin is not having a good day. My heart is breaking for him.

Gavin’s IVIG infusion was a complete disaster

I mentioned earlier that we were all excited because Gavin got new tubing for his IVIG Infusions that have historically reduced the infusion times significantly.. Unfortunately,  that didn’t prove to be the case today.   In fact, his infusion took almost 3 hours to complete and that’s pretty close to the record for longest infusions …

Continue reading

Gavin’s IVIG Infusions are changing today and here’s why

Tonight’s posts will have to do with some changes that are coming. The  two changes that will be discussed, beginning with this post and ending in the follow up a few hours later, should bring about positive results.  In this post, I wanted to share a change that is being made to Gavin’s biweekly IVIG …

Continue reading

%d bloggers like this: