Category: IVIG Infusion

Gavin’s #IVIG infusion supplies never showed up and that worries me

Without going into the backstory again, Gavin is on IVIG twice a week because of his severely compromised immune system. You can read that backstory here. We received a notice from his insurance that they were no longer working with his current, longtime supplier and would be switching to a new company. This is potentially …

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We got some insanely good news

I wanted to drop you a quick line to share a bit of insanely good news. Let’s be honest, it’s been a little while since I’ve had some really good news to share. Well, you can reset that counter because I have some good news to share. ☺ Yesterday morning or early afternoon, I got …

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Like we didn’t already have enough on our plate

I received really bad news as Lizze and I were leaving her grandmother’s funeral, on our way to the cemetery yesterday.

This is a perfect example of why being a #specialneeds parent can be so exhausting, frustrating and overwhelming

We’re not off to a good start today. I basically woke up to Elliott and Emmett fighting and it went downhill from there. I could have weathered the fighting but then Gavin entered my morning with news that very much pushed me over the edge. Gavin casually approaches me and tells me that he’s only …

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Chalk one up for the win column

For the last month, we’ve been struggling with Gavin’s IVIG Infusions due to a shortage of supplies. It wasn’t a huge deal because we had them send out the missing supplies and he never missed an infusion. While the supplier screwed up, it was my fault for not checking everything when it was delivered. It …

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I’m not really angry because I screwed up

It’s Monday and that means Gavin should be receiving his IVIG infusion. In fact, it should have already been done. Unfortunately, we’re still missing supplies. I talked about this last week and explained the somewhat angry phone call I got from the person who is in charge of making sure Gavin gets his supplies. I’ve …

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