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July 25, 2017
How the IVIG infusion went
Gavin's infusion went pretty well yesterday. For some reason, the while process went really fast, and was completed in about an hour. That was really good timing. Thankfully, Gavin didn't appear to suffer any negative side effect and that's something we're always grateful for. ☺
July 25, 2017
Living in #meltdown Hell
It's safe to say that we are officially inside a fever cycle. If you look at the image below, you can see Emmett's temperatures over the last couple of weeks. We crossed over the 100°F threshold, that is typical of a fever flare. If that wasn't evidence enough, his demeanor has been a kick in the nuts. Yesterday afternoon we went Pokémon hunting/walking in North Canton. The idea was having some fun while getting a bit of exercise. Things were good until we got there and Emmett was out of Pokeballs. The moment we pulled into the parking lot, Elliott caught a Pikachu with a hat on. I guess that's a big deal. Emmett couldn't get it because he needed to find a Pokestop first. Anyway, the trip was a…
July 25, 2017
Why our kids with #Autism won’t be attending the funeral
I want to share why we have decided not to bring our three kids with Autism, to my great aunts calling hours, and/or funeral. In some ways, this decision was difficult, but in many others, it was easy. When it comes to saying goodbye to a loved one who's passed, it's easy to assume that everyone needs closure or the opportunity to say goodbye. In most cases, I would agree, but there are some cases in which I strongly disagree. When it comes to kids with Autism, every parent has to do what they believe to be best for their child. These decisions might not be popular but they are necessary to ensure the child's best interest. It's really important to understand that every child with Autism is different, but…
July 24, 2017
The week ahead
The boys slept through the night and that's awesome. Lizze and I were exhausted but managed to get some sleep. I'm not aware of anything going on during the first half of the week. Towards the end of the week, we will have calling hours and need to make arrangements for that. We've decided that we will not be taking the boys to calling hours. I'll explain why we made that decision in a later post.
July 24, 2017
We had a death in the family
UPDATE: https://www.theautismdad.com/2017/07/24/why-our-kids-with-autism-wont-be-attending-the-funeral/ Over the weekend, our family lost a truly amazing person. She was my Great Aunt and my Grandmother's sister. She was like a second Mother to my Dad, and a huge part of my life growing up. Please keep my family, especially my Grandmother, in your thoughts and prayers during this difficult time. Thank you.
July 24, 2017
Getting shit done and taking a break seem mutually exclusive
I don't know about any of you, but when we manage to get a break from the kids, we're usually completely exhausted. Thankfully, we get somewhat regular breaks, because the boys have very active Grandparents. That's an absolute blessing. Having said that, when we get a break, my wife and I are so far beyond tired, all we want to do is crash. When I go without sleep (or quality sleep anyway) for as long as I do, the first thing I do when the boys leave, is go to sleep. I know that I can't actually make up for lost sleep, but my body certainly tries. Whenever we get a break, we also face a conundrum. Do we rest, or get caught up on things around the house? Trying…
July 23, 2017
It’s been so long since we’ve done this
Lizze and I did something we haven't done in years. We binge watched Underworld, Underworld Evolution, Underworld Rise of the Lycans, Underworld Awakening, and Underworld Blood Wars. We were super lazy but it was awesome. I can't remember the last time we've done anything like this. Sometimes it's nice to do absolutely nothing, for much longer than we should. It's been a long, stressful week and I feel like we've earned a night of nothing. ☺
July 23, 2017
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