Tag: childhood disintegrative disorder



Unboxing the @VivintHome Glance

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I want to give you guys a first look at the new Vivint Glance. It’s the new panel from Vivint Home. This will be setup as a secondary panel, but it won’t be mounted. The idea is to have a panel that can be moved if need be. The internal… Read more »



Elliott and I went for a walk

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Elliott and I went walking by ourselves. Emmett didn’t want to go and Gavin was laying down. Lizze stayed home with the kids, so Elliott and I could still go.  It was really nice spending time with Elliott. We walked about a mile and a half, and he talked the… Read more »



The calm before the storm

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It’s been a super quiet day so far and I’m loving it. ☺  The boys had a great time with their Grandparents and they came home a few hours ago. Everyone is getting along and that’s always a good thing.  We have zero plans for today and that’s nice as… Read more »



Special Needs Parenting decisions are NOT easy

Lizze and I have found ourselves back in a place where we have to make decisions about Gavin’s life that simply aren’t always black and white.  Gavin has an extraordinary amount of health issues, and they require us to make very difficult decisions all the time. The most recent round… Read more »



Emmett and I had a great time

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Yesterday, what began as a potential family trip to the movies, ended in Emmett and I going by ourselves. I was going to take everyone to see Transformers at the dollar movies, until I realized that Gavin wouldn’t be able to go. Sticking Gavin into a potentially crowed theater, is… Read more »



Difficult decisions

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The boys are spending the night at their Grandparents house. We opted to keep Gavin home with us because they were going to a large family gathering, and we’re avoiding Gavin being places like that until after we see the hematologist. Lizze and I had been looking forward to going,… Read more »



Super Major Update and Awesome News

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I wanted to let everyone know a big thing happened while we were at Gavin’s immunologist last week. I already mentioned how we discussed his labs and why his numbers keep dropping.  What I didn’t tell you is that his immunologist cleared him for our trip to Florida. ☺  There’s… Read more »