Surprise Surprise

The wait for Gavin to have is bloodwork done about one hour and fifteen minutes. At about the one hour mark, Lizze parents showed up and took over waiting. They had texted me about hanging out with Gavin this morning and wanted to come pick him up from the lab. I was able to head home and they were able to spend some time with Gavin. That's a win win in my book. Now we simply have to wait for the results of his labs. This is the part I'm dreading. As many of you know, I hate when the only thing left to do is hurry up and wait.

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The perfect morning

We're off to a good start this morning. Both Elliott and Emmett got dressed and ready for school with very little difficulty. We got to school on time, which is always a great way to start the week. ☺ At present, I'm waiting for Gavin to come out from having his bloodwork done. It's probably going to be a longer wait because they look super busy. That's okay because Gavin has the patience of a Saint and I have a few things to do. If I had to script the perfect morning, this would probably be it. Let's hope his lab results are good news and the rest of the day follows the same trend. ☺

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Just a day in the life of a Special Needs parent

The goal for this morning is to get the kids to school on time and if I'm lucky, in a good mood. ☺ Immediately after that, I have to run Gavin across town for what will end up consuming the rest of my day. That's right, he needs his Monday morning bloodwork again. This is how we are monitoring whatever is going on with his blood. Here's how this will go down. Gavin will get his bloodwork done about 8:30-ish AM. From that point on, my anxiety will be through the roof because I'll be awaiting the results of his labs. The results will tell us how our week is going to go. If they're bad again, the focus will be on figuring out what, if anything we can do.…

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Is Sensory Processing Disorder controlling our lives?

Sensory processing disorder sometimes seems to be controlling our lives. It really is something that has an impact on so many daily functions, and unless you're living with or loving someone with this struggle, it's very difficult to understand. In my house, all three of our kids face these daily struggles. Their brains are hardwired differently and they do not perceive sensory input correctly. This leads to frustration, being overwhelmed, anxiety, meltdowns and yes, even physical pain. Truth be told, we gave up on a balanced diet a long time ago and now focus on calories. While sensory processing disorder (SPD) impacts many areas, but the most challenging for me as a parent, revolves around eating food. The most profoundly impacted are Elliott and Emmett, so I'm focusing here for…

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I’m so excited for occupational therapy today

It's been quite a bit of time since his last session, but Elliott returns to occupational therapy Monday afternoon. His last appointment was before we left for Florida and because he's been sick or the therapist was out, we just haven't connected. At this point, all signs are go for his return and it couldn't come soon enough. He desperately needs occupational therapy. He needs the physical outlet, strength training and coordination building that goes on at this fabulous therapy session. Even better, he doesn't have to miss any school for this either. I'll pick him up after school, drop Emmett off at home and head to Akron Children's Hospital for his 45 minute session. It's been about 2 month since his last session so I fully expect him to…

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Sometimes it’s the little things

This past week has been a rougher one for Mr. Gavin. For some reason, he's been dealing with bouts of nausea. Some of these bouts have been worse than others but they seem to mostly happen at night. Thankfully though, the last couple of nights have been good for him. I don't think he's had an issue since Thursday night. You might be asking yourself, why is Gavin being nauseated such a big deal? The problem isn't so much the nausea itself but rather the vomiting that can occur as a result. Gavin has a very serious Autonomic disorder that has come close to killing him on a few occasions. Basically, his brain stops controlling involuntary functions like blood pressure, body temperature and heart rate. When this happens, he goes…

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#Autism Parenting: We’re all in this together

While I utilize this blog to help support my family, I do that by helping others. Not everyone appreciates what I do here and that's okay because it's probably not for them. The people that I'm doing this for, will largely remain silent because nothing needs to be said. Many times though, people will reach out privately and ask for help or share how reading my blog has helped them. Sometimes they want to share their experience but aren't comfortable doing it in the comments. Sometimes the comments here can be kinda rough and while it annoys me, it discourages others from speaking up. This morning I received an email from a parent who's dealing with what will likely be a two year old, newly diagnosed kiddo. They're worried, stressed…

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Did that just happen? Yup, it totally did.

I had a rough evening yesterday. My stomach was upset and I ended up going to bed about 7:00 PM. I wasn't sick or anything, but I was dealing with a tremendous amount of stress and it manifested in me not feeling well at the end of the day. While Lizze was putting the kids to bed last night, I laid down in my our bed. I definitely needed the rest because I was out and aside from waking up to run to the bathroom, I didn't get up until about thirteen hours later. It was about 8:00 AM when I woke up this morning and I felt pretty goddamn amazing. This isn't something that can happen very often but because the kids were incredibly well behaved this morning, I…

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