Tag: Cleveland Clinic



As a general rule, I don’t apologize for any of my kids with #Autism but this is one exception

I mentioned in a previous post that something happened yesterday while at Gavin’s hematology appointment. Akron Children’s Hospital was great, they always are. You have to understand something before we go any further. This appointment took place where Gavin used to receive his IVIG infusions. We’re very familiar with this place after years of visits. …

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Here’s what happened at the @ClevelandClinic yesterday

We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared the results of his Orthostatic testing but you can find those here. Overall, his appointment went really well. We talked about our concerns in regards …

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We’re returning to Pediatric Neurology at the @ClevelandClinic today

Gavin has an epilepsy follow-up in Pediatric Neurology at the Cleveland Clinic this afternoon. We’ll be leaving shortly and I’m hoping that everything goes well. Today’s appointment serves as both a follow-up and a consultation. Gavin is supposed to have an endoscopy and colonoscopy on June 5th. We’re worried about how his autonomic dysfunction may …

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There’s a lot to process after her appointment today

We just got home from our trip to the Cleveland Clinic. The kids are picked up and ready to go to Lizze’s parents for the night. Lizze and I are both exhausted, and looking forward to a nap when the boys leave.  As far as Lizze’s appointment goes, there are some major changes she has …

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Waiting for answers at the @clevelandclinic 

Lizze and I made it to Cleveland, with a bit of time to spare. We did that despite some asshole almost crashing into us as he tried to pass us on the single lane in ramp.  Aside from that, traffic wasn’t too bad, and we had a nice conversation.  I’m waiting for Lizze to get …

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