Tag: Common Variable Immunodeficiency

This sets a terrible tone for the day

It was a rough night. Emmett woke up after a really bad nightmare and never went back to bed. He woke up shortly after midnight, just as Lizze and I were going to bed.  There was zero chance of getting him back to sleep and in order to prevent him from waking anyone else up, …

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Happy Sunday

A little sunshine…… I took this picture a few days ago. I manually edited it to remove the background color, or restore the color of the main flower. It depends in how you look at it. Anyway, this took a little while but I’m really pleased with the way it turned out. Related Posts: Parenting …

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Hopefully it goes well and without side effects

The boys had a great time at their Grandparents house last night and today. They’ve been rather quiet since they arrived home. I haven’t heard any fighting and that’s awesome.  We’re going to do dinner and then Gavin’s IVIG infusion, before moving on to bedtime.  Hopefully, Gavin’s IVIG infusion goes well and without any side …

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Do you agree with this statement? 

The boys are in their way home and I’m feeling slightly recharged. That’s about as good as it gets when you’re an Autism parent. If you ever get a break, it’s never enough to fully recharge.  What you end up getting is just enough of a recharge to keep puttering along. Autism parents expend so …

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Thank God his supplies showed up

I mentioned yesterday that Gavin’s IVIG infusion supplies hadn’t showed up. Thankfully, they arrived yesterday, right before the boys left for their Grandparents house.  I showed Gavin how to make sure that he received everything he was supposed to by going over the supply list, and checking things off.  Gavin did an awesome job accounting …

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Feeding our marriage

Lizze and I had a nice night. We went and saw the new Spider-Man Homecoming movie, and it was awesome.  I can’t remember the last time we spontaneously went to a movie, let alone a super late showing like tonight. It felt good to be able to do that. It’s important that Lizze and I get …

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