Read more about the article Here’s what happened today
Akron Children's Hospital / Emmett John / My thoughts / Optometry / Self-Care

Here’s what happened today

It's been a really, really long day but I think I'm finally done. Here's a couple notable things about our trip. Emmett's appointment went fine. Akron Children's Hospital never disappoints. We truly are lucky to live in proximity. The exam itself only took a few minutes and his old prescription wasn't that far off. He only needed a few minor adjustments and he'll be good to go. I suspect that Emmett may be very sensitive in regards to his vision. I don't know if it's a sensory thing or not but that would make sense. Anyway, we stopped at Walmart to both pick out and order his glasses. Insurance covers only $18 and we are not allowed to make up the difference. This means he will have a very cheap…

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November 9, 2018
Read more about the article Emmett and I made it to the always amazing @AkronChildrens hospital for his eye appointment
Akron Children's Hospital / Emmett John / My thoughts / Optometry

Emmett and I made it to the always amazing @AkronChildrens hospital for his eye appointment

Emmett and I battled horrendous traffic, while drinking dangerously hot - hot chocolate, in order to get to Akron Children's Hospital for his desperately needed eye appointment. Actually, traffic wasn't too bad today but the hot chocolate was seriously hot and Emmett does need new glasses in a very bad way. ☺ Anyway, we got here safely and it's now a waiting game. They're super busy and I just want to get this done. I'm so grateful we were able to get in sooner than next month. As soon as we get done, we'll stop and order his new glasses.

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November 9, 2018
Read more about the article I heard back from 3 doctors this morning and it’s good news
Akron Children's Hospital / Emmett John / My thoughts / Optometry

I heard back from 3 doctors this morning and it’s good news

First of all, I'll get to all the new comments but we're in a hurry this morning so it will have to wait. I just wanted to lay down a quick update because it seems like very positive news. I spoke with the eye doctors office in regards to Emmett's appointment today. I explained all that was going on and what we were concerned about. They said not to worry about it. We can bring Emmett in because he's asymptomatic, other than a runny nose and he's not running a fever. That's really good news. ☺ Within about 2 minutes of ending that call, I heard from Gavin's immunologist who said that as long as Gavin's on his IVIG Infusions, he should be in good shape. That's even better news.…

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November 9, 2018
Read more about the article My youngest has been directly exposed to #whoopingcough and now we have some serious concerns
Emmett John / My thoughts

My youngest has been directly exposed to #whoopingcough and now we have some serious concerns

As if we didn't have enough to worry about already. I think I actually titled a post that the other day. I've been doing this a lot lately, but I'm going to cut to the chase because surprise surprise, I'm exhausted. Emmett is supposed to go to the eye doctor tomorrow. You may recall that his glasses broke about a week ago and it's about $100 to replace them because they're transition lenses. We could figure out the money but they need to be stronger and he was scheduled for an appointment in December. I was able to get the appointment moved to today, at 10:45 AM. It's at Akron Children's Hospital, so we have a bit of a drive. Emmett is so excited because he's having a tough time…

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November 9, 2018
Read more about the article Why do I even bother making plans anymore?
My thoughts

Why do I even bother making plans anymore?

It's been a somewhat challenging morning. Lizze is really struggling with the loss of her grandmother at the moment. People grieve their own way and in their own time. My job is to support her through this process, without rushing her but maybe gently nudging her from time to time. It's very easy to lose ourselves in dispair and sometimes we need someone there to throw us a lifeline, even if we don't realize we're drowning. Anyway, our original plans for this morning needed to be adjusted. Oddly enough, my calendar said there wasn't any school today. There isn't any school tomorrow because of conference's but I'm not sure why I had it as a four day weekend in the calender. Emmett got to wear pj's to school today and…

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November 8, 2018
Read more about the article Aside from learning he’s having chest pain, here’s how Gavin’s appointment with #Cardiology went
Cardiology / Cleveland Clinic / Gavin / My thoughts

Aside from learning he’s having chest pain, here’s how Gavin’s appointment with #Cardiology went

First of all, I appreciate your patience with this update. I'm exhausted and just didn't have the energy to write earlier. I'm going to try and keep this brief because I want to be in bed before midnight. Gavin had appointments at the Cleveland Clinic today. His first appointment was for an EKG and the second was with his new cardiologist, immediately after. While we didn't hear the results of the EKG, from what I saw, it looked normal. I was trained to read EKG's as a medic. It's been awhile since I've read a 12 lead but nothing stuck out to me and I'm sure if something was wrong, we would have been told. His actual appointment with his new cardiologist went really well. She's really nice and was…

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November 8, 2018
Read more about the article We’ve arrived at our 3rd and final doctors appointment for the day
Gavin / My thoughts

We’ve arrived at our 3rd and final doctors appointment for the day

Gavin and I just got home in time to make it to his 3rd and final appointment of the day. We're meeting with his therapist to talk about some of the things Gavin's struggling with and brainstorming some ideas in regards to helping him work through them. The main thing we're focusing on is his negative, internal dialog and his inability to cope with imperfections. We'll have to see what happens and go from there. I'll be updating you about Gavin's appointment with Cardiology at the Cleveland Clinic in a little while. I need to catch my breath first. ☺

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November 7, 2018
Read more about the article We’re waiting to see the doctor and Gavin’s getting hangry
Cardiology / Cleveland Clinic / Gavin / My thoughts

We’re waiting to see the doctor and Gavin’s getting hangry

Gavin's EKG went well and literally lasted only a couple of minutes. We made it to his second appointment of the afternoon and just spent a good bit of time, meeting with the nurse, going over a detailed family history. She was great and I really appreciate that. ☺ Now we're waiting for the doctor and I must say that it feels like it's about 1,000 °F in this room. I hate being up here by myself but it is what it is. Hopefully it won't be too long of a wait because Gavin is getting hangry..

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November 7, 2018