Tag: IVIG Infusion



Worst Day Ever – Maggots, ice and a basement full of sewage

I’ve been a bit overwhelmed since yesterday evening and I haven’t written. I wanted to take a minute and vent because I’m on the brink of insanity. We went to the Farmer’s Market yesterday and if you follow me on social media, you already know the nightmare that brought with it. The Farmer’s Market is …

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This goes in the win column

We managed to beat the bad weather this afternoon and sneak in a a roughly 30 minute walk. It’s the first family walk we’ve gone on in at least a week. One of my goals this summer is to get the kids out walking at least a few times a week. We are going to …

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It’s a bittersweet blessing

I went back and forth a few times with multiple people from Akron Children’s Hospital this morning, trying to figure out the missing lab work thing. I’m happy and relieved to say that I think we’re good now. ☺ We have the pre-op prep instructions that he will begin on Monday and while unpleasant, it …

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Pre-testing at @AkronChildrens Hospital went better than expected

It’s been a really long and emotional day. I wanted to quickly let you know how testing went this morning at Akron Children’s Hospital. This was all in regards to the medically necessary procedures Gavin needs to have done on the 5th of June. We had been concerned about how he would react to learning …

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We’ve arrived at @AkronChildrens Hospital for pre-testing

It’s not even 7AM and we’re sitting in the lobby of the surgery wing on the 4th floor of Akron Children’s Hospital. This is an appointment that we’re a bit nervous about because we aren’t sure how Gavin’s going to react. The whole point is to go over the details of his upcoming scopes, make …

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I totally need to sleep tonight

I’m going to bed early because we’re starting our day at 5AM. It’s going to be a long morning and I’m not sure how it’s going to go. I haven’t been sleeping well and I’m hoping to get enough to make battling traffic something I can handle. lol The boys are at my parents house …

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