I have to be a phone ninja this afternoon

The game plan for the rest of the day is phone calls. I need to get the results of Gavin's EEG and find out why his new IVIG Infusion Pump didn't show up last week. Unfortunately, after getting home from the appointments this morning, I crashed for a couple hours. I was up with Elliott until well after 3 AM. Elliott however, never fell asleep himself but took a nap this morning. I'm off to a later start now but it shouldn't prevent me from collecting the information I need in regards to Gavin's Immunodeficiency and Epilepsy concerns. I just need to be a phone ninja and get it all done.

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The roads were horrible but we made it

Well it's quite obvious why school was canceled today. The roads are complete shit and we had a very difficult time simply breaking through the ice to get inside the car. We did safely make it to his appointment and everything went well. The only thing worth mentioning is that we go back in 30 days to do the paperwork required to maintain guardianship over Gavin after his 18th this month. I'll talk more about that later. Now we're off to get his bloodwork done.

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Shit….. It’s another snowday

Once again, we're having to adapt to changes that are outside of our control. This time, it's in regards to a surprise snowday. The boys don't have school know because of all the snow amd ice that popped up over night. Our plans for accomplishing everything that needs accomplished this morning have now changed as a result. The roads are really shitty right now and taking everyone out with us is a needless risk. Lizze will stay home with the boys and I'll be taking Gavin to his appointment on my own. We're going to leave quite early to ensure there's enough time to safely arrive. Rather than stressing out over things not working out as planned, I'm just going to roll with the punches on this one cause that's…

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Poor Elliott couldn’t sleep last night

Elliott had the hardest time falling asleep last night. I was up with him until well after 3 AM. He wasn't upset about anything or stressed out about anything either. He simply couldn't sleep. He seems to go through these periods of time where he really struggles to sleep. This is one of the reasons we're keeping an eye on him for signs of being Bipolar. Major sleep disruptions can be a sign of mania and Gavin definitely experienced that before he was medicated for Bipolar Disorder. Hopefully, the rest of the day will go smoothly for him. I hate sending him to school with such little amounts of sleep but he seems fine and we can't miss school for this. Praying that bedtime will go better for him tonight…

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I’ve never been a tiny dog person but this is too cute

I've never been a small dog person. I've definitely never been a tiny dog person. Since we adopted Ruby a week or so ago, she fits unbelievably well into our existing family. She's super smart, completely housebroken and loves playing with Maggie or the ferrets. One of the things I didn't expect to happen was for her to bond so closely with me. She literally has to be in physical contact with me all the time. If I get up and move, she follows me wherever I go. I can't even go to the bathroom without her wanting to follow me. I have to draw the line somewhere and it's right outside the bathroom door. It's weird how she hasn't even known us that long and yet she's adjusted so…

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#Depression Confessions: 3 weeks into withdrawaling from #Paxil

Today marks the first day of the last week of the first four week phase of withdrawaling from Paxil. Did you get all that? lol There are four phases of withdrawaling from Paxil. The first two are each four weeks long. The last two are two weeks each. I'm officially beginning the final week of phase one. During this phase, I've been rotating between 40 mg/day and 20 mg/day. The first week was pretty horrible and I was really sick. By the end of the first week I was beginning to feel better but unfortunately, insomnia came next and that lasted about a week as well. The third week has actually been pleasant and I expect this week to be the same. After this week, my dose will officially be…

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This morning will be completely focused on Gavin’s needs

We have quite a bit going on this week and it all begins on Monday. After we get the boys off to school, I have to take Lizze and Gavin for bloodwork. Lizze's labs are routine in nature and Gavin's are so we can get his next refill of Clozapine on Wednesday. I guess it's sorta routine but it's much different in nature than Lizze's. Anyway, after that, Gavin has an appointment with his psychiatrist. This is for the sole purpose of seeing how a Gavin's labs have been and if we can safely continue the Clozapine. I'm not expecting anything unexpected because if his labs were bad, we'd already know about it. After we finish up with that, Lizze has to go to the mall and get her wedding…

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#Autism and #Legos: Gavin’s latest Creation

Gavin's been on a Lego kick recently. He's always loved Legos as he regresses, he has sorta gotten away from them because they were as easy for him to work with anymore. On Saturday afternoon, Gavin spent four hours building this from scratch. This was done completely using his imagination and he was so excited to share the picture with you all. I didn't get around to editing the image and writing the post until after midnight but he must have asked me a dozen times if I'd posted it yet.. ☺ Please take a second and leave him a positive comment below about his masterpiece. I'll be reading them to him later on.

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