Gavin has been examined,  had his blood taken and an IV put in place. He keeps getting these weird rashes,  all over his body that only last a few minutes and then show up somewhere else.

I had just sat down to eat lunch when Gavin crawled down the stairs.  I’m so friggin hungry because I missed breakfast. My bowl of fruit and yogurt is sitting at home,  watching the screen saver on my TV,  not being eaten by me. 🙁

We are waiting for labs to come back and for Gavin‘s neurologist to either come down or call.

The hospital doesn’t seem to be very concerned about this but they also aren’t familiar with Gavin and likely don‘t treat many kids with autonomic disorders.  Gavin‘s totally not himself and something just isn’t right.

Sometimes we have to fight to have our concerns taken seriously.  They are taking great care of him, don‘t get me wrong.  They are just less worried than I feel.  Does that make sense?

Thank you all for your thoughts and prayers.

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.