This isn’t supposed to happen

It’s Gavin’s 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I’ve taught him to put together kits containing everything he needs for each infusion. This serves a dual purpose. It helps him to learn how to …

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Today didn’t go as planned

As with everything else in my life, today didn’t go as planned. We were going to celebrate day two of Gavin’s birthday and we did but with a some changes. We decided not to bake a cake today because Lizze is dropping one off on Monday. Instead, Emmett baked his cookies and we watched a …

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A fun little update

It’s been an interesting weekend thus far. The boys came home yesterday from a visit with their Mom. They all had a great time and I’m so glad we were able to get this safely worked out. There was some transition challenges but it’s a small price to pay for everyone to get a chance …

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I got a break for the first time since September

It’s been a couple days and I wanted to share something before I crash for the night. This will be brief because I’m exhausted and I’ll try to follow up later. The other day, I called Lizze to find out if they’d been locked down for at least 14 days. They had been and so …

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A few concerns have bubbled to the surface today

Gavin missed his IVIG Infusion yesterday because his supplies never showed up. I called the pharmacy and they are apparently waiting on a new order from his doctor. They expect to have that some time today and then we should get the supplies this week sometime. This always makes me nervous and I know it …

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We escaped for a little while today

The kids had a mixed bag kind of day because life is just getting to be a bit much lately. I got the kids to school and we made it through the school day. I mean, it’s remote learning so we didn’t have to go very far but it can still be a challenge. Everyone …

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