Lizze Update

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We just got out. Lizze has a cyst at the base of her brain but apparently its not something to worry about. She does have tremors. He said they were called “Familial Tremors”. It also looks like she does have narcolepsy. She is scheduled for a sleep study soon.

Both of these conditions are genetic and so they are passed down the family line even if not everybody has it. It would extremely helpful if her biological mother wasn’t so unstable because we have NEVER gotten anything but lies from her. Medical information for Lizze and the kids is so vital and also a “luxury” we don’t get to have. Lizze’s doctor’s have all said medical information would save them time and give them a direction to go in.. As it is we are left to take shots in the dark.

Be grateful for your medical information if you have it. Diagnosing without it takes a lot more time and needless (and sometimes painful) tests for her and the kids.

LT



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