More diet issues

      6 Comments on More diet issues

So Emmett was switched to soy milk today. The problem we have now is that he broke out with a rash on his face and had tummy troubles throughout the day. I’m confused as to why soy didn’t show up on the tests. I have no idea what we are supposed to do and we don’t see the doctor till next week. What really sucks is that I just went grocery shopping like a day before hearing about the test results.

Lizze and I have been trying to figure out how to shop for food now. Milk and egg are in almost everything. I am completely overwhelmed with everything and have no idea how to cope with this stress. 

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  


  • WalterWinesberry says:

    Have you tried camel milk for autism yet?


  • Aunt Kathy:

    Your mom would be a great source of information regarding gluten free. A guy I work with is Celiac but not to the extreme his daughter is. Reading Labels will be extremely important. The good news is, if he does have it, it’s caught early on. Grandma Bing, Aunt Dorothy and their cousin all had different forms of Celiac. I have a feeling this is something genetic on our side.

    He isn't on the gluten free diet as of yet. We will know for sure after the biopsy. Right now we know for sure that he CANNOT have milk and egg. We switched back to soy last night and he broke out and had tummy issues. We are trying coconut milk today. It is supposed to e free of any milk byproducts. The truly difficult part is that he doesn't understand and we have no way to explain it to him. The other kids are having to eat in their bedrooms so Emmett doesn't freak out.

    It's really good to hear from you. Hope everything is going well…

  • Aunt Kathy says:

    Your mom would be a great source of information regarding gluten free. A guy I work with is Celiac but not to the extreme his daughter is. Reading Labels will be extremely important. The good news is, if he does have it, it's caught early on. Grandma Bing, Aunt Dorothy and their cousin all had different forms of Celiac. I have a feeling this is something genetic on our side.

  • Almond milk, coconut milk, and rice milk are all gluten-free and casein-free. We use almond milk quite a bit to cook food for our son who is on the gluten-free, casein-free diet.

  • Is casein the problem? Because unfortunately, that's in every kind of milk, even soy. You may want to try goat's milk actually. We tried it and only 2 out of 6 people that tried it said the noticed there was any difference between it and normal milk.
    Even though it too, does have casein, it has much much smaller casein proteins which are not processed at all, meaning that they break down far easier.
    The big down side to it however, is price. It's even more expensive than the soy.

    Anyway, yeah, diet is a big problem. You don't realize just how much stuff has some form of gluten and casein until you have to find the stuff that doesn't have it.

    • I didn't know that but you are right. My mom has celiac which requires the gluten free diet as gluten destroys her small intestines.

      She was saying this diet is going to be tougher then her's. I noticed you posted from an Android phone. There is an apparently on the market the lets you scan the barcodes of items at the store and it tells you whether it contains gluten. It works really well. Check it out if you haven't yet it could be of some help to you.

      I will look into goats milk and also almond milk. Thanks for the heads up because you actually pointed us to the cause of our problem today. Thanks again my friend…….hope all is well…..