Lizze met with her neurologist this morning for a follow up and to seek help. She has a new form of migraine that she hasn’t had until the past 2 weeks or so. She now gets stabbing pain in the middle of her head that when it hits drops her to the floor. There is no physical cause like tumors or anything (THANK GOD FOR THAT) so it’s just more of the same.
Apparently her neurologist agrees that there is no cure for the fibro or her migraines. However, Lizze’s tremors have gotten so bad that we need to treat them and the treatment is very similar to what the new psychiatrist wants to do. She also said that she has had positive results with Abilify and her fibro patients. So this means Lizze will start everything this afternoon or tomorrow morning. I’m completely on board with anything that has a chance to help her.
At the same time however, I have no idea how I’m going to pull this off. I would be lying if I said I had the strength to do this. Everything will now literally will be on my shoulders. Lizze will no longer be driving (at least for the near future maybe 6 months) anymore. That presents it’s own unique set of problems
Honestly, our lives are more then both of us could handle on a good day together. Now the team will be down a key player. What really sucks is being in this situation in the first place. No one should have to deal with all this at one time and if they ever do they need to be much stronger then me.
This is going to be a very bumpy road that will require much sacrifice along the way. Some how I will figure it all out. In the coming weeks Lizze will have surgery (with or without the aid of insurance who is still refusing) and Gavin will have his surgery at the Cleveland Clinic Main Campus. Emmett will have weekly trips to Akron Children’s Hospital as well. Elliott has his weekly therapy and Lizze will have whatever goes along with what she will need.
This is just part of life and we will all face it together and come out on the other side. I’m just not looking forward to any of this…..
Please continue to send thoughts and prayers our way.