Snuggly Emmett, Sleepy Daddy

I saddened to say that Emmett has hit yet another cycle.  He has been running a fever since yesterday afternoon and has developed large cold sores on his tongue. 

He’s actually in a surprisingly good mood, considering.

If we had it to do all over again,  I don’t know that I would go through with the surgery he had a few months ago. While the surgery did lessen the intensity of the cycles,  they are no longer predictable.

The cycles used to hit like clockwork,  about every 3 weeks and last for 10 days.  Now they hit at random times,  often twice a week.  They don’t last as long but they are more frequent.  In a sense,  it’s worse now then before because we have no idea when the next one is going to hit and for how long.

Either way,  Emmett is super snuggly and while I wish he wasn’t sick,  I love and cherish these snuggle times.

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– Lost and Tired

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Abs

Did you try cimetidine before the surgery? My son's fevers hit every 2 weeks for about 5 days (but he's missing the APA, he only gets a fever of 104-105). Did you find it worked for you? We haven't decided what route we're going to go with his fevers so it's nice to hear one person's experience with surgery

Lost_and_Tired

Nice to meet you. I'm not sure what cimetidine is.Emmett was diagnosed with Marshall's Syndrome or PFABA ( I don't remember actual name),

Emmett's fevers have reduced in intensity. He has hit as high as 105.3F before and now he maybe hit about 100+F. The surgery certainly did change the pattern. The only problem we have no is that he no longer has a schedule for these fevers anymore. It used to be like clockwork and now it's random and more frequent.

I think he's better off having had the surgery, it just doesn't cure it. He's less miserable now. I hope this helps. I'm here if you have any more questions. 🙂

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