Snuggly Emmett, Sleepy Daddy

Snuggly Emmett, Sleepy Daddy

I saddened to say that Emmett has hit yet another cycle.  He has been running a fever since yesterday afternoon and has developed large cold sores on his tongue. 

He’s actually in a surprisingly good mood, considering.

If we had it to do all over again,  I don’t know that I would go through with the surgery he had a few months ago. While the surgery did lessen the intensity of the cycles,  they are no longer predictable.

The cycles used to hit like clockwork,  about every 3 weeks and last for 10 days.  Now they hit at random times,  often twice a week.  They don’t last as long but they are more frequent.  In a sense,  it’s worse now then before because we have no idea when the next one is going to hit and for how long.

Either way,  Emmett is super snuggly and while I wish he wasn’t sick,  I love and cherish these snuggle times.


– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling 😉

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Did you try cimetidine before the surgery? My son's fevers hit every 2 weeks for about 5 days (but he's missing the APA, he only gets a fever of 104-105). Did you find it worked for you? We haven't decided what route we're going to go with his fevers so it's nice to hear one person's experience with surgery


Nice to meet you. I'm not sure what cimetidine is.Emmett was diagnosed with Marshall's Syndrome or PFABA ( I don't remember actual name),

Emmett's fevers have reduced in intensity. He has hit as high as 105.3F before and now he maybe hit about 100+F. The surgery certainly did change the pattern. The only problem we have no is that he no longer has a schedule for these fevers anymore. It used to be like clockwork and now it's random and more frequent.

I think he's better off having had the surgery, it just doesn't cure it. He's less miserable now. I hope this helps. I'm here if you have any more questions. 🙂

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