We met with Dr. Pattie last night to discuss Gavin’s behaviors and the impact they are having on the family. She watched the videos and described the behavior as institutional behavior.
This is very concerning because he’s continually escalating. Since this is willful behavior it’s even more concerning. The reason is because when doesn’t get the reaction he’s looking for, he ups the anty. The biggest concern is how far is he willing to go.
If he doesn’t get the reaction he’s wants, by hurting himself, what will he do next?
His meltdowns are becoming much more violent and they are moving in a direction that makes them more dangerous to those around him.
One of the things Dr. Pattie mentioned last night was that Gavin has absolutely no ability to deal with frustration. When he gets upset or frustrated, he launches into one of these meltdowns. Something else to worry about is there fact that he still has seizures, even in their meds.
There are several triggers to Gavin’s seizures. Things like hyperventilation, sleep and lights, all cause seizures in Gavin.
When Gavin is having one of his meltdowns, he’s out of breath and at risk of having a seizure. However, of we intervene, then he will be getting the desired outcome from his behavior. If you were to look in the dictionary, this is their very definition of being between a rock and a hard place or dammed if you do, dammed if you don’t.
I think you get there point.
I have no idea how to handle this behavior, or if we can even handle these behaviors at home.
I will not allow him to hold us hostage in our home. Knowing that he’s doing this know purpose does eliminate they guilt I once felt, holding him accountable. He has their power to stop this. What he chooses to do with this ability remains to be seen…..