Dysautonomic Crisis: Update 07/13/2012 (6pm)

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I made it up to the hospital to see Gavin,  in record time.  I was dropping the boys off with my family and I got a text from Lizze saying that Gavin was having another crisis.

When I finally got through to the hospital,  Lizze told me what had happened. 

Gavin had some more heart problems again and actually had to be sedated.  This happened during his echo cardiogram.  His speech is slurred and otherwise gibberish. 

When I arrived Gavin‘s resting heart rate was in the 150’s. He also has a migratory rash that is really weird.  The rash literally appears and than disappears about every 5 minutes. It’s really disconcerting to watch this happen. I don‘t know what we are supposed to do but I don‘t want to go home. 

A little bit ago,  he spiked a fever of about 104°F but his temperature is different one each side of his body. 

This is friggin weird…and very scary..


**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Jennifer Fury

hang in there…..hope you get some answers and soon


Thank you Jennifer


We're praying, Rob, {hugs} To you and Lizze and the whole gang.
My recent post Banking Fees for Overdrafts when Not OverDrawn? Goodbye Old National Bank


Thank you Kat. We are in the Epilepsy Monitoring Unit and the only thing not happening right now is seizures.


Praying for you guys!!


Thanks a lot Nikky. I really appreciate it.