A rock and a hard place

The perverbiall shit just keeps hitting the fan. Gavin has injured both Elliott and Emmett today with his impulse issues. He headbutted Elliott this morning and kick Emmett square in the face this afternoon.

No one was seriously injured but that’s not really the point.

No one should have been injured at all. Gavin is just flailing around and not paying attention to what’s going on around him.  The first time we went easy on him but it happened again so we are going to have to take a different approach this time

Lizze is having near syncopal episodes lately.  Basically,  she will either stand up from the sitting position and get so dizzy that she almost blacks out.

This also happens while she’s walking as well.

Yesterday, we had to invest in a heart rate monitor for both her and Gavin. What we have found is that when these episodes occur,  her heart rate is dropping below 50 bpm.  That’s a pretty significant drop and very likely the reason she keeps getting dizzy.

This, among other reasons,  are why we are getting her into the Cleveland Clinic for a complete work up.

This is happening often enough that she is no longer able to safely drive.  This means that I have once again been promoted to chauffeur,  for everyone and everything.  I don’t mind having to drive but I’m already having a hard time keeping up.  Now with Lizze having similar issues to Gavin,  things are going to be a bit more challenging. 

I wish that I could say with confidence,  that this won’t be a problem,  but I feel like I’d be lying if I did.

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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I’m so sorry Rob, I know how it feels to be stuck between that rock and a hard place. I just keep telling myself that it will get better. I wish I lived closer to help you out. Please know that you have people thinking about you and the family and praying for you…….

I’m so sorry Rob, I know how it feels to be stuck between that rock and a hard place. I just keep telling myself that it will get better. I wish I lived closer to help you out. Please know that you have people thinking about you and the family and praying for you…….

chloe

Do you think it is sensory related? Does he have trouble knowing where his body is in space?
My recent post Dreams really do come true! Different… Not Less, We Need Acceptance, not just awareness!

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