Tuesday is a huge day for the Lost and Tired family. Gavin returns to the Cleveland Clinic and Elliott returns home from the Hamptons.
Gavin is scheduled for minor surgery at 10 am Tuesday morning.
This procedure involves taking various skin biopsies from various parts of his body and using them to tailor a very specific genetic test. They will also be looking for neurofibrosis, if I recall correctly.
The procedure lasts about 20 minutes and they made special arrangements to do it Tuesday. The doctor that does this doesn’t normally do this procedure on Tuesdays.
After that we will have about 5 hours to kill before his next appointment.
The second appointment will be with the autonomic specialist. This is crucial because he will play a huge role in getting Gavin into residential treatment.
This will be a follow up and a consult as well. We need to find out what it will take for Gavin to be medically stable enough so he can be placed in treatment.
This will be a huge obstacle to overcome. In many ways, this may be more challenging than the actual funding itself.
I have many worries about Tuesday, the biggest being the minor surgery. Gavin will not be asleep for this procedure. They will however, use a numbing cream. I have no idea how the samples are collected and even less idea of how well this isn’t going to go.
I wouldn’t be excited about this happening to me. I can’t image how Gavin’s going to feel about this.
It may seem mean but we won’t tell him about this until the very last minute. He will obsess over this if we don’t. The reality is that one of two things will happen. Either he won’t care or he’s going to care a whole lot.
There’s no middle ground.
This was posted via WordPress for Android, courtesy of Samsungs Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me.
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