How could someone help your special needs family?

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I get a lot of different people reading this blog everyday.  Most are special needs parents but some are friends and family of special needs parents or just people that want to learn more.

This is a really rare opportunity because if we embrace those wanting to better understand and learn,  we can take part in educating them about #Autism.



Taking it one step further,  we can also help empower them with the knowledge of home they could reach out and help a special needs family like yours and mine. 

So today’s #Autism Discussion is going to be, how could someone help your special needs family?

Please share some ways that someone could help your family.  I think that many people want to help but simply don’t know how. Help them to help you.

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me.

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Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Life Interrupted

A national Medicaid ruling mandating all states have a deeming waiver for kids with autism can have access to  the medicaid funded programs and services that cannot be accessed any other way. There exists a reverse discrimination in states without deeming waivers and the families with private insurance or  those above poverty level have no other means of accessing those services for their child. No other venue exists. It is disheartening and frustrating to say the least.
On an individual note the list of helpful actions is nearly limitless.  It’s hard to keep up with basic chores much less maintenance and repairs. I’d love for someone to run errands for me instead of dragging my son around with all the invitations that presents for a meltdown – or the chance to run errands and know that he is well supervised.  Life here is ruled by the logistics of feasibility and routine. The general rule is don’t upset the tea cart because it isn’t worth the result.


Beyond how other people could help, is there a way that public policy makers could help? This may be a whole other question, but it is the arena that I work in, so I am always interested in it.  For instance, one policy I am working on is trying to make sure everyone can earn some paid sick days – up to seven or so per year. Would this type of policy help special needs families?


Food.  You know, like when we have our babies and some nice folks drop off a cassarole or some soup and salad. Honestly, by 5pm I love cooking and all things food – I am a full time student in Nutrition/Dietetics – but in my sleep deprived state i would just rather eat a pop tart than hit the kitchen for what feels like my third work shift.  And I hate pop tarts.  And Austin ( 9 years old with Asperger's) only eats pancakes anyway. Sigh. Thanks for being here. I just happened upon you yesterday and I have to say I feel you and I am also lost and tired.  As an aside, I too suffer from migraines; I am thinking of your wife and hoping she finds relief soon.


Help do chores you don't know how depressing it is that the house is never clean there's always a mess with two aspies in my house. I always had a spotless house even taising the older five children but these two wear me out.


@TheresaLeeClark I totally understand. I feel the same way.


I guess it depends on who is willing to help and what are their capabilities to help.  For example for my close family members and friends they could help by just giving me a hour or so break from time to time.  My boys have never been asked to go anywhere with any of my family or friends without me.  For specialist I could really use the help in getting an official diagnose for my oldest son who will be 22 in February.  For those who don't know me at all the best way is to help is to ask "how can I help you?" instead of making rude remarks or starring.  But the best way for ALL to help is to educate yourself, accept what is different and embrace those who struggle with it everyday!


@TinaMarieCrain well said. Very well said.