Living with a newly diagnosed tree nut allergy

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As you may recall, a few days ago Elliott was officially diagnosed with serious allergy to almonds.  His immunologist wants any and all tree nuts removed from his diet and he must carry an epipen of his person, at all times.

This is a pretty big hit and we weren’t prepared for this. 

We literally just moved past Emmett’s food allergies to milk, egg and lactose. I think he was officially declared allergy free about 2 months ago.

Now we are scrambling to figure out what Elliott can and cannot eat.  Once again the rug is yanked out from under us.  Poor Elliott is really upset and is becoming paranoid that there’s some type of tree nut in everything he eats.



We’ve also had to introduce him to his new best friend, Mr. Epipen Jr…….

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He’s not really fond of him at the moment but we explained that if he is unable to breath because of something he ate, this can save his life. 



We also explained that hopefully, he’ll never need it because we are going to be very careful about what he eats. 

The doctor explained that while Elliott is allergic to almonds, there is an increased risk of him developing allergies to other tree nuts.  He will have to be on a very ridged diet in order to ensure that he doesn’t come into contact and ingest something with tree nuts in it.

This will be the new norm for the boy known as Elliott, for at least the next year. 

After one year, he will be tested again and possibly food challenged at some point.

For now, it’s the day before Thanksgiving and we didn’t plan a tree nut free Thanksgiving. We also hadn’t planned on tree nut free grocery shopping either. 

This is going to be a very rough couple of weeks until we get our feet on the ground. We are going to have to work very closely with the school to figure out how to handle this during the day.

We may be packing his lunches from now on. 

I do want to also note that this could be worse and I’m aware of that.  It doesn’t seem like that at the moment but…… I’m very grateful that Elliott was able to voice what was happening to him so we could get him tested.  Hopefully now, we will be able to protect him better because we know what we’re up against. 

This is my glass half full statement for the day.  I don’t think I have anymore in me right now.  🙁

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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DLaubacher
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The good news almost everything is clearly labeled nowadays for nuts, tree nuts, peanuts and other allergens. When my son was first diagnosed at age 2.5 yrs with a peanut allergy it was so stressful!  Nothing was labeled for peanut allergy — like “was processed on equipment that processes peanuts”…no one labeled that way.  It took grassroots movements and advocates for allergy awareness to get the labeling.  Now, 20+ years later, yes, much better labeling.  You should do fine….You will discover lots of brands that will work fine for your food needs.  Happy Thanksgiving!!

rmagliozzi
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rmagliozzi

There is a company called Enjoy Life Foods that has a whole line of food that are free of all the major food allergens, including all nuts. You can find their products in alot of grocery stores or order online. They are all made in a nut free facility. My son with almond and other allergies loves all their products. They can be pricey but I use coupons when I get them. I know also there are two brands of Larabars that are nut free: chocolate cookie dough and coconut cream pie, and also coconut cream.  Look up FAAN (Food… Read more »

lostandtired
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@rmagliozzi Thank you for the info. 🙂

lostandtired
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@DLaubacher Thank you very much and Happy Thanksgiving to you as well.