Coping with #Autism and Food Allergies

      9 Comments on Coping with #Autism and Food Allergies


The Lost and Tired family isn’t new to food allergies.  However, past food allergies weren’t as serious as what we are now dealing with.

In the advent of Elliott‘s newly diagnosed tree nut allergy, I trying to figure out what the best approach is to eliminate those things from his diet

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I guess my question is, if your child has a tree nut allergy, do you simply remove it from their diet or the entire house?



In our case, Elliott is the only one with this allergy and trying to find a balance between food he can eat and food everyone else can eat has been difficult.

Many times, Elliott simply refuses to eat because he either can’t eat what everyone else is eating or he is afraid that his food will make him sick.

As a child with aspergers and high levels of anxiety, he has a very difficult time with change. 



I’m wondering if we should move the whole family away from tree nuts.

To me, it seems like it would be easier to adjust the meals for everyone than it is to make two of everything.  I also think it might help Elliott to feel safer because he would know that everything in the house was safe to eat.

The school has already made sure that the lunch menu is allergen free and it is. 
We will be meeting with a nutritionist in the near future to further fine tune things. 

I just wanted to know what you folks thought. It’s one thing to hear something from someone who likely doesn’t live with or deal with the same struggles.  It’s another thing entirely to hear from people who are dealing with the same thing, day in and day out. 

Any advice would be greatly appreciated.  Also feel free to pose your own questions as well.  This is a very important topic and let’s cover this thoroughly.

Thanks

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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agenthner
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agenthner

We have removed all gluten from the house … slowly.  Everyone by my husband is now diagnosed (myself and 3 kids) but when two of the kids became diagnosed it was too difficult to differentiate.  My middle has Asperger’s and both older have severe anxiety, so I understand where you’re coming from.  The girls are much more comfortable knowing that all food in the house is safe.    My youngest is allergic to dairy, too, but we have substitution dairy for him and simply cook with coconut or almond milks and use oil-based margerines instead of butter.   I would… Read more »

chefaimee
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chefaimee

I would do whatever makes him the least anxious. Idk if you read my post the other day or not, but I also suffer from Anaphylaxis. I am deathly allergic to aspirin, ALL NSAIDS (Ibuprofen, motrin, etc.), Aloe Vera, and strawberries among other weird things. It begins with my eyes swelling shut, then my tongue swells, then my throat closes. I carry an Epipen and benadryl everywhere, and have them stashed in places I might not have a purse with me. Examples: taped under my desk where I used to work, in a drawer in the kitchen, in the storage… Read more »

Rob Gorski
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@chefaimee thanks. I will do just that. Also, my wife has a niece that has celiac so bad that they can’t even keep flour in the house. She is severely affected by the airborne particles. My mom has Celiac really bad as well but not as bad as that.

chefaimee
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chefaimee

@lostandtired I definitely understand the problems that celiac can cause, however there is a long and sordid history whereby if he himself can’t be a ‘victim’ of some mysterious ailment, his children are. As a Chef, I can assure you that teenagers working in a snack bar (where this girl gorges herself like a farm animal) are far less cautious than I am. It’s very frustrating for any family gathering, because that is the ONLY issue that can matter. Ever. They keep other food in the house for the other family members (bread, pasta, etc.) or I would have never… Read more »

dotdash
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dotdash

Has he ever had an actual reaction to a nut or is it just that he’s got the antibodies when they tested at the doctors?  (Those tests have a lot of false positives.)

Rob Gorski
Admin

@dotdash he has a physical reaction to almonds. The test showed his numbers were pretty high. Whenever he has something with almonds in it, even if he’s doesn’t know they are there, his throat begins to hurt and he begins coughing.
As far as the other nuts go, because his number are high and the fact that it’s a tree nut, he can’t have any of then at all.

LarissaKlymenko
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LarissaKlymenko

My son is diagnosed with classic autism, and has many food allergies as well.  He is allergic to ALL NUTS (tree and peanuts), citrus, apples, all outdoor allergens (grass, tree pollen, animal dander, etc.), so it can be tough. He also shows a mild response to wheat and soy, so we have removed soy from his diet.  We have yet to go wheat – free ( and his allergist agrees that he probably is not allergic to it ).  We tried the gluten – free diet for a few months some years ago with very poor results – he had… Read more »

FreshWaterSystems
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Many of you might have seen the recent news story about food allergies and the link between drinking water and pesticides. There was plenty of discussion about the topic but very few solutions offered for people who are concerned about this chemical Dichlorophenol. Since there is no information or test done about water filter systems that would reduce DCP’s from your drinking water we asked a Water Quality Association certified water specialist (level 6) what his recommendations would be. For people who are interested we have developed a topic page seen here http://www.freshwatersystems.com/t-FoodAllergyandDrinkingWater.aspx to outlining the problem and possible water… Read more »

estrellaSMC
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estrellaSMC

I don’t have allergies, but I do have gallstones, which means I have to avoid fatty foods. What we have done is to keep the fatty things limited to things I don’t like so I’m not tempted by them.