Today’s IVIG Infusion: Change of plans

Gavin has his IVIG infusion in the morning at Akron Children’s Hospital.  Lizze or myself was supposed to be taking him.  Unfortunately, Lizze is not in a very good position to do that tomorrow.  She’s also not in a good position to stay back with Emmett either. 

She’s absolutely miserable and trying to cope with her almost 16 month old migraine, worsening hot flashes and her typical fibro pain…

Anyway, Lizze’s Mom is going to take him in the morning so that he can get this done.   She’s happy to do so and we are very, very grateful.

In the morning, I will begin my push for answers by getting in touch with Gavin’s autonomic specialist at the Cleveland Clinic and update him as to what’s going on with Gavin. He’s probably going to want him to be seen, so we’ll add that to the ever growing list of appointments we have this month in Cleveland. 

For right now, I just hope Gavin tolerates the IVIG Infusion well and we can make it through the day without an Autonomic Crisis. 

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Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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