This week, I’ll be making 4 trips to Akron Children’s Hospital. It’s only about a 30 minute drive on most days but I’ll be there 4 out of the 5 days this week.
Monday, Gavin gets fitted for his Holter Monitor.
The actual appointment shouldn’t take very long because they are just attaching it to him. However, he’ll be home from school….all day.
He has to wear this for at least 24 hours and that will give his cardiovascular team a better idea of what is going on with his heart.
When the monitoring is completed, most likely on Tuesday, I’ll drive the device back up to the heart center so that the results can be read before our appointment on Friday. This appointment will be to discuss what’s going on, bring them up to speed and find out the impact that this autonomic dysfunction is having on his heart, if any at all.
The most likely thing to come from this is additional heart meds or adjustments to the ones he’s already on.
The reality is that his brain in the problem, not his heart. We know that they can’t fix this. However, we are trying to limit any collateral damage to his heart if alt all possible.
The forth trip…….
We’ll, I can’t talk about that right now. You’ll have to wait until Thursday evening to hear all about that. It’s nothing bad, so please don’t worry.
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