Getting discharged from @AkronChildrens

Gavin is getting discharged this morning.  While his condition hasn’t really changed, he’s not getting worse.  We may be dealing with a new baseline now. 

In other words, this may be his new normal.

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Every once in awhile, Gavin experiences a shift in his health.  The resulting changes become his new normal. Does that make sense?

Anyway, that may be what were dealing with at this point. The last major shift was his first Autonomic Crisis, about a year ago.

While this isn’t good news, it does explain the bizarre experience he had and why his symptoms aren’t changing for the better but at the same time aren’t getting worse.

Whenever this happens, it takes some getting used to because the changes make us very uncomfortable at first.

For now, we will be going home.

Thank you so much for your love and support for both Gavin and our family.  🙂

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Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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lostandtired

Dwayne Murphy OnyxPanthyr thank you very much..

Dwayne Murphy

I’m praying for Gavin.

OnyxPanthyr

Good luck!