Raising a child with Primary Immunodeficiency isn’t easy

I really concerned about Gavin because he’s not getting over this respiratory bug.  His cough is much worse than last week and Lizze and I are hesitant to send him to school because he has a severely compromised immune system to start with. 

Last week, his Immunologist said that it’s okay if he gets sick, we just have to keep an eye on him. 
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We don’t know whether or not to send him to school.  Aside from his cough, chest and nasal congestion, he seems fine.  My concern is that this develops into pneumonia or something yucky like that. It wouldn’t be the first time.  

I wish there was some kind of instruction manual for these kinds of things.  I’m totally at a loss as to what we should do.

Normally I would error on the side of caution but he wants to go to school and so that makes it a little more difficult.  If he said he didn’t feel up to going to school that would make the decision easier. When he says that he wants to go, we’re torn between being cautious, overreacting and maybe he’s okay to go.

We’re a few years into the sudden primary immunodeficiency but this is the first time he’s been sick since he’s been on IVIG. That’s why we’re nervous about this.

This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉



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rjones22

i know you are nervous. i dont think drs realize when they say it is ok for them to get sick NO IT IS NOT because we dont know how horrible it will get. we dont know if we are over reacting or what. what is worse about raising a kid with immunodifiency is NO INSURANCE. stil working on it with his social security if that ever goes thru or obamacare which will not be untill jan if then

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