We have a very challenging week ahead of us. In the morning we start things off with Gavin’s Monday IVIG Infusion.
I’m still not sure how Elliott’s going to be feeling. His eye is looking much better but we’ve had to use his rescue inhaler a few times this weekend as well.
He’s definitely got something brewing. We just don’t know if it will pass or he’s gonna need to be seen…..
Tuesday will find us returning to the Cleveland Clinic for a follow up with Gavin’s Autonomic specialist. I’m a bit uncomfortable having him make the hour plus long trip on a good day. However, just having had his infusion the day before makes even more uncomfortable.
The rest of the week includes the usual appointments and a few others that I know I’m forgetting about.
I’ll be real honest with you. In feeling like poop righr now because my allergies are driving me crazy. I can’t stop sneezing and I’m totally congested.
I’m exhausted already, just thinking about everything that must be accomplished this week.
Remaining positive is my goal at this point but it’s not going to take a whole lot to knock me down at this point.
I suppose I’ll just take everything one step at a time..
This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉
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