Lizze and I are off to meet with our new attorney.  We have decided to fight for her disability.  It was put in place for people like her. The attorney we are going to work with is going to help us with the appeals process.  He only gets paid when we win and only get a % of the lump sum.  This means nothing out of pocket. Hopefully,  all will go well and this process will be relatively painless for her. Lord knows we could really use the disability and Lizze is very clearly disabled.  We just need to clarify some things and the attorney will help us with that.  Wish us luck... Please.  :-)

Today started very early for the Lost and Tired family.  Emmett got up about 4:30 this morning and wouldn't go back to bed. I'm sure that part of the problem was that he wasn't feeling good. This is not the best way to start the day....

Sometimes the stars align and we have a victory. Today was one such day. I introduced you all to Bella, the newest member of the Lost and Tired family. I talked about how she seems to be helping Emmett with a few of his challenges. I know this may not be the case for everyone out there but animals and Autism have been a good combination, at least for my kids. We had a major breakthrough this afternoon with my littlest minion, Emmett. Emmett is very sensory sensitive and really struggles in that department. He has to feel the ground to see if it's wet before walking outside. He doesn't like getting water, dirt or mud on his shoes. I can't tell you how many meltdowns we have had over…

Lizze and my littlest minion Emmett,  have arrived home from the doctors.  Apparently,  it was a good thing we took him in because he has a nasty sinus infection.  I looks like antibiotics will be on the menu tonight and for the next 10 days. Hopefully, this will help him to feel better.  Our doctors are awesome and we are sooooo grateful that they do such a great job with our kids :-) Between the #Autism,  PFAPA and now a sinus infection,  we are lucky to have medical staff that understands and works with our boys unique needs. If your in the Canton area,  we go to North Canton Medical Foundation.

In the 5 minutes that past since I last posted about all we had left to do today,  our plans have changed. Lizze just called to tell me that the rest of the day has been canceled.  Dr. Reynolds went home sick and Dr.  Pattie has an emergency.  I hope both of them are okay.  So,  as it turns out,  this is it further rest of the day.  While it sucks that we have to wait 2 more weeks for Elliott to get any relief, we will be able to call it quits much earlier today than previously planned.  That does have its benefits.

We have all heard the saying,  and apple a day keeps the doctor away. I'm here to say that an apple a day doesn't really keep the doctor away. Don't believe me,  just ask Emmett. Emmett is currently at the pediatricians office.  He's in the middle of a fever flare and is now actually sick as well. He is just a miserable little kid right now. His mouth is completely filled with cold sores,  and they look horrible. We don't normally run to the pediatricians office for a cold but in Emmett's case,  we aren't sure what's what. Does that make sense? We do know what is actual illness and what is just part of the fever flare. Lizze is feeling well enough to take Emmett to the doctors but…

Elliott is so extremely anxious that he is literally an emotional ticking time bomb. He hates school now because,  well honestly,  I don't know why. We literally have to carry him,  kicking and screaming to the car. There isn't anything going on at school that would explain this.  I think he literally counts the minutes until he comes home. I hate that life has become so challenging for him. I wish I could magically fix everything for him but I can't. We see Dr.  Reynolds tomorrow afternoon to discuss medication options again.  After the Zoloft disaster,  I'm a bit nervous to try anything else.  :-(

Gavin's EEG was a success.  We don't have the results or know what anything means yet.  However,  we have an appointment with the neurologist soon and we'll find out then. The experience for Gavin wasn't a bad one.  I don't see Elliott doing well with any of this. He won't tolerate this well and probably freak out.. Having said that,  he may totally surprise me and that would be a-okay with me. I really can't say enough positive things about Akron Children's Hospital.. They are sooooo great with the kids and make an otherwise unpleasant experience, better.