One of the things that are difficult in my life as a special needs Dad is coming to terms with my own humanity. What I mean by that is accepting my limitations as a parent, embracing my emotions and not beating myself up for getting frustrated with my kids. There… Read more »
It’s been a very long week and I’m spent. The good news is that Lizze’s pain has been cut in half, which is an enormous weight off her shoulders. It’s far from perfect because the amount of pain she’s still in would likely incapacitate most people, but it’s significant progress…. Read more »
We’re preparing to make the trip back to the Cleveland Clinic’s Neurological Center for Pain once again today. This time it will be for Lizze’s final headache infusion. There’s a really good chance that she will walk out today with her pain having been cut in half for the first… Read more »
This week’s episode is all about Sensory Processing Disorder and meltdowns. These are extremely important topics that cause a great deal of confusion. Sensory Processing Disorder (SPD) and Meltdowns are two of the most commonly misunderstood things that an Autistic person can experience. Even more confusing is how to know… Read more »
Lizze and I are getting ready to hit the sack because we have a really early day tomorrow. I wanted to take a few minutes and touch base with you fine folks because we have some positive news on the migraine front. ☺ First of all, Lizze had another bad… Read more »
Lizze’s infusion has been going well for her today. She’s slept through a large part of it and I’ve just been sitting in the lobby waiting. They’ve decided to once again try the medication that caused problems yesterday. This time it’s going to be more diluted and will probably take… Read more »
