This is my first video blog. The setup isn't the best, nor is the quality. If I do this again, I'm going to continue to improve upon these things. In this video I talk about Elliott's doctors appointment as well as new Gavin related information. [youtube width="720" height="480"]http://www.youtube.com/watch?v=5al-lh9Rxjs[/youtube]   Important Links:   Ehlers-Danlos syndrome Special Needs Parenting Support Group

This afternoon, Lizze had backed some biscuits for the boys. Emmett refers to them as cinnamon rolls for some reason. Apparently at some point, Emmett and Elliott had both left their biscuits -on the a plate- on Elliott's bedroom floor and walked away. Having found them unguarded, Maggie took advantage of the situation and gobbled them up. Emmett was very mad. I got him on film, explaining -in his own words- what exactly had happened to his beloved biscuit. This first video is him trying to explain what had happened and the second video is Emmett reenacting what had happened. It'd pretty darn funny and cute. If you have had a day like mine, you just might appreciate this :-)   [youtube width="720" height="480"]http://www.youtube.com/watch?v=xav2Y1-j2FI[/youtube]   The reenactment [youtube width="720" height="480"]http://www.youtube.com/watch?v=8F95PwY_M5A[/youtube]:

My goal for tonight is to do a video blog. I have way to much to say and not enough energy to type everything out. At the moment, I'm extremely overwhelmed and really trying not to break down. In hoping to get the kids in bed and then have some time to put this together. Please be patient and stay tuned.... Posted from WordPress for Android

Today is going to be another crazy busy day. Elliott has an appointment this morning for the whole connective tissue thing. After that, we have so running around to do and medications to pick up. Gavin will need picked up from school and right before dinner, we have an appointment with Dr. Reynolds, Gavin's psychiatrist. In-between all of this, Emmett has speech, OT and PT for about an hour and a half. It's kinda funny how I have become so used to this that it really doesn't like we are going to be that busy. The reality is that, this is a really busy day, whether I'm just used to it or not. I guess after awhile, I have just adjusted to this crazy schedule. It has become normal. Posted…

I need some advice for people in the know. Last Friday, Emmett was at the immunologist. She manages Emmett's rare fever disorder. This was just a follow up visit but we left with new concerns. I mentioned a few times how Emmett complains of pain in his joints, mainly his elbows. Something I have noticed is that his hands are almost hot to the touch, even when he's not running a fever I forgot to mention that while we were at the appointment, however, because of Emmett's joint pain, the immunologist is concerned that Emmett may have rheumatoid arthritis. We are waiting for our appointment with the rheumatologist. This has us a bit worried and I'm wondering if anyone has had any experience with juvenile rheumatoid arthritis? My second question…

The 2nd part of our Canton Repository interview will take place tonight. The reporter is going to meet with Dr. Pattie and myself tonight. This will provide verification of everything. This is a positive thing because even putting this fundraiser aside, this could help to spread Autism Awareness in a city solely lacking it. Hopefully, things will go well and we can all connect tonight. I'll let you all know how it goes. Please wish me luck :-) Posted from WordPress for Android

Today has been pretty crazy. I was on my own today because Lizze is in pretty rough shape today.  My day began around 5 am with Emmett waking up.  After getting the other 2 boys up and dressed,  Emmett and I took them to school.  I had to bribe Emmett with sausage from McDonalds in order to get his cooperation this morning but it was worth it because he actually ate it.  After that,  we had to hit the pharmacy to grab some things for Lizze. When we got home,  Emmett got a bath and then a nap. While he was sleeping, I caught up on some phone calls that desperately needed to be made.  When Emmett woke up,  I fed him lunch -which he didn't eat- and then we…

I'm a man of many talents but did you know I was a stuffed animal plastic surgeon? Probably not. I only ever break out this skill in the most desperate of circumstances.  One such circumstance arose the other night. Elliott received a Hello Kitty stuffed animal wearing an Angry Birds costume. The problem was, as Elliott out it, "Hello Kitty has lazy legs" - see the before picture-. He had been using Scotch tape in order to hold the legs in a better position. However, living under the same roof as Emmett, makes this fix, quite temporary. Emmett doesn't tolerate tape or tags on clothes or stuffed animals. As soon as Emmett noticed the tape, he freaked out until it was removed. This presented Elliott with a problem. How do…