I have been documenting our journey with Gavin. This journey has recently taken a dramatic turn towards the more complicated. For those of you that are new to this blog and subsequently our story, and here is the cliff notes version. Gavin was diagnosed with Aspergers in 2005. However, since then, the he has experienced continual regression. Its been a slower process but we have reached a point where it's pretty obvious something is wrong. About 2 months ago we discovered that Gavin had basically no immune system and now needs monthly infusions in order to keep from getting sick. We also found out that he has lost his reflexes as well. We have been everywhere in search of help, including the Cleveland Clinic and Akron Children's Hospital. However, despite…

So I went up to the bathroom today to clean it. I noticed that the previously, almost empty bottle of hand sanitizer was full. Upon closer examination, I realized what had happened. Emmett in is never ending quest to keep everything full, discovered the hand sanitizer was almost empty. He took it upon himself to refill the bottle so that it was no longer empty. He actually umscrewed the lid and refilled the bottle without saying anything to anyone and without making a mess. Of course, he filled it with water, but still. I love finding these little surprises because they always make me smile. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without…

Elliott had nightmares once again last night. This meant that he was up very late because he was afraid to go back to sleep. The equates once again to no sleep for the daddy. Gavin is talking nonstop and continuing to tippy toe dance on what's left of my last nerve. I don't know how much more I can take.. I'm really trying to be patient and listen to everything he has to say but at this point it's like nails on a chalkboard to me. I know he can't help it anymore than I can help how I feel about it. Emmett seems to be getting worse instead of better and we will likely be back to Akron Children's Hospital today or tomorrow at the latest for an evaluation...…

Something to think about as you tuck your kids into bed tonight. We all love our kids more then anything in the world, regardless of their challenges...right? I think that is the foundation we need to build on in order to help the community as a whole to move forward. I think that's a common denominator that we all have in common.     Please remember, We should be united by our cause not divided by our differences.

So I guess it's official. The next edition of the DSM will remove all Autism subtypes (Childhood Desentagrative Disorder, Asperger's, ect). When we were at the Cleveland Clinic last week continuing to look into a CDD diagnosis for Gavin, we were told that the diagnosis essentially doesn't matter because pretty soon it will no longer exist. Plus there is no treatment so it really serves no practical purpose. So my question is, what how do you feel about the removal of Autism subtypes? Everything will just be considered Autism, at least as I understand it. What are your thoughts on this and how do you think it will impact your life of the life of your child? Don't be shy, your opinion is important and I would love to hear…

Tippy-Toe Dancing...that's exactly what Gavin is going. He's Tippy-Toe Dancing on my last nerve. I swear, if I have to repeat myself just one more time, I'm gonna lose it. I swear, if I have to repeat my......sorry force of habit. Gavin has been needing me to repeat everything and sometimes more than once. I'm so tired of hearing the sound of my own voice. I can't even filter his voice out anymore, but I know that sounds harsh but sometimes I just need to survive. It's almost bed time and then daddy will finally get a break... Happy place... Happy place.. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of…