The stress is getting to me

The stress of everything is getting to me again.  Gavin seems to be getting worse and I feel completely helpless. The reality is that most likely this is just part…

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Operation Hope: I don’t remember

I'm growing more and more concerned about Gavin's condition. His continued neurological regression is really scaring me. The biggest and most obvious problem is his memory or rather lack thereof.…

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Approaching a milestone

We are very quickly approaching a major milestone in our lives.  For the first time ever, all three boys will be in school, at the same time.  This has never…

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I’m feeling hopeful

It's been a really long time since I could say that I have honestly felt hopeful. I'm feeling pretty damn hopeful right now. Everyone had a good day and Gavin's…

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The IVIG Infusion went well

Gavin did really well at his IVIG Infusion today.  There were no changes made to his dosage and so it was business as usual. Gavin is coping well with the…

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