It just goes to show that we, as special needs parents, really know our kids. Despite all the protesting from Emmett about not being tired, I knew he was. This…
Gavin had his 12th antibody infusion this afternoon. It's hard to believe that it has already been any earlier since we discovered that he has primary immunodeficiency. I remember hearing…
I wanted to talk for a little bit about what happens when routines change. Every child on the #Autism spectrum reacts differently to change. This post in particular, is how…
Today will be Gavin's 12th IVIG infusion. It was roughly one year ago, we found out about Gavin's immunodeficiency. It was something that completely caught us off guard. While we…
We made it home safely. The return trip was much easier then the trip up there. We met with the doctor for about an hour and had a very interesting…
They just took Gavin's vitals. He is experiencing orthostatic bp issues. That means that his bp drops when sits or stands. At least we are in the right place. **Thanks…
We have arrived at the Cleveland Clinic, exactly on time. Traffic was horrible and Gavin is already out of it. We are all checked in and waiting to go back.…
We are on our way to hopefully find answers. It's about an hour and twenty minute drive, not including traffic. I have a feeling that this is going to be…