Well, we finished up a few hours ago.  It went pretty well.  It is however,  becoming more obvious that Gavin is regressing.  He's behaving more and more like a 3…

When it's time to go back to the room where the infusions will take place,  there are a few things that have to be done before we get started. This…

The IV has been placed.  Also,  we arranged for Akron Children's Hospital to draw the blood for Gavin's weekly blood draw.  This way he doesn't need to traumatized a second…

Gavin will receive his 4th antibody infusion in the morning.  We will be at Akron Children's Hospital for most of the day. So far these have gone pretty well.  His…

I'm absolutely frustrated with Gavin.  I'm very aware that majority of my frustrations revolve around behaviors that are outside of Gavin’s control. However,  just because they aren't his fault doesn't…

Here is today's picture of the day.  Elliott is posing with Gavin's hat on (which is much to big) and looking extra cute. - Lost and Tired Posted by Wordpress…

Elliott had another rough day at school today.  He's having a bit of a tough run lately. We're not quite sure what's going on but there appears to be anxiety…

Today was going pretty well until a few minutes ago.  First,  Gavin comes downstairs and wants to know if he can shut the door to Elliott's bedroom because it's giving…