The kids are going to my parents tonight. They help us out even to their own detriment. I wish we had other family that could help them out but we don’t fit nicely in many others lives so my family is really all we have left.
Anyway, Lizze has an MRI in the morning to rule out a brain tumor as the cause of the debilitating migraines. They are also trying to find an causes for her neuronopathy. She also has tremors so they are looking for that cause also. She has never had an MRI of her brain before so this is a big (and nerve wrecking) day. We don’t expect to find anything cause all her CAT Scans have been clean. However, this will serve as a baseline scan also.
If the MRI is clean then her doctors will most likely take her in the direction of disability. Her neurologist has told her that because she has 14 or more (and it’s more) migraines per month that don’t respond to medication that he considers her to be disabled. Add to that the fibromyalgia and all that goes with that and he’s not sure how she even functions. So tomorrow is a very big day.
We kept Gavin home from school because he wasn’t feeling well and he has to see Dr. R today around lunch time. We had to cancel the IEP meeting also. We see Dr. R to discuss Gavin’s switch to lithium. We are very nervous about him being on such a hardcore drug. But the reality is we have run out of everything else. Gavin’s also started puberty so that makes meds even hard to manage cause his body chemistry is changing.
So far that’s what is happening today and tomorrow but everything is subject to change as our lives are predictively unpredictable.