What this special needs parent wishes you knew…

I wish you knew what it was like to walk a mile in my shoes.

I wish you knew the challenges I face raising a special needs family.

I wish you knew that I need help even though I don’t ask.

I wish you knew how difficult and yet amazing my kids are.

I wish you knew how a random phone call could make my day.

I wish you knew how isolated and unimportant I feel.

I wish you knew how tired I am.

I wish you knew how much I hate being questioned, especially in front of my kids.

I wish you knew how completely overwhelming life is.

I wish you knew how much my kids miss you.

I wish you knew how much I miss you.

I wish you knew what it felt like to watch your kids struggle through life.

I wish you knew how heartbreaking it is to hear, “your child is Autistic”.

I wish you knew what it felt like to be a special needs parent.

I wish you knew the sacrifices required to be a special needs parent.

I wish you knew the fear I have of the future.

I wish you knew what it feels like to lose everything.

I wish you knew how much I’d love to hang out, even though I can’t.

I wish you knew how much I resent the fact that you never call unless you need something.

I wish you knew how much it hurts to know my kids don’t remember your name because your never around.

I wish you knew that I cry at night because I can’t do better by my family.

I wish you knew just how much you take for granted every day.

I wish you knew what it felt like to be me.

 

 

5 comments

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    • Heather on August 28, 2011 at 11:39 pm
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    Thank you for saying so beautifully what I have been thinking for some time now but could not put into words. I have 3 children on the spectrum as well and people really do not understand what everyday is like for us.

  1. this moves me. a lot. i've shared it on my own blog – giving credit and linking back to you. thank you for sharing with us.
    My recent post What this special needs parent wishes you knew…

  2. i always say i wish you knew what it was like to walk a mile in my shoes. but i really wouldnt want to risk swapping shoes with someone. someone alien who doesnt KNOW, someone who doesnt "get it" someone who is just a snob when it comes down to it. my kids dont deserve that… Lost and Tired, i feel your frustration, and i hear you… just want to say your hard work isnt unnoticed, your boys are AWESOME and it is all because of YOU. 🙂

  3. I wish you knew…

    how my heart breaks for you and your struggles, but how it swells, knowing that there are still strong, loving, compassionate people out there.

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