The wait is killing me

It’s now Thursday and we still haven’t heard back from the Cleveland Clinic. The doctor said we would hear from her before Friday. She also said she would call with more questions but she hasn’t.

I don’t know what we are supposed to do for Gavin. Something is definitely wrong and I hate not knowing what we are up against. 

I hate being in the dark…..

– Lost and Tired

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Was thinking of you when I was getting ready to log on. The wait can be the worst part of finding something out. From what I have read, it seems like you are at the start of a new diagnostic journey. I know you’ve been through so much already- not fair at all when it comes to our kids- but please feel our support for you as you move fwd. Have they looked at mitochondrial issues? Hoping they find a way to help Gavin. Hugs to you & yours today. (my phone won’t let me comment on ur blog!) [Basekamp]

Lost_and_Tired

Thanks alot. I really appreciate it. I'm not sure what direction we are going to be going in at this point. We will figure things out. Right now there's just alot of uncertainty

Thanks again

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