Not a good day

This is not a good day. Gavin has been all over the place and is continuing to drive me crazy. During one of his recent meltdowns, Gavin cracked his bed frame. Today however, he finished the job and actually broke it.

For safety reasons, Gavin will once again have a mattress on the floor. No more bed frames in the foreseeable future for him. This pisses me off because now I have to pull the rest of it apart and haul it downstairs and out to the trash. This is one of the big reasons why Gavin’s room has be pretty stripped out. Everything in there just gets destroyed. I don’t know exactly how he broke it today, but I do know that if he hadn’t been kicking it during his meltdowns it wouldn’t be broken right now.

He doesn’t seem to care either or at least he’s not upset by it.

I have to have him to Dr. Reynolds in 2 hours for another consult and medication check. We also need to see if we can figure out what is wrong with him right now. He has been lethargic and doesn’t seem like himself among other things.

I don’t know if we have hit another notch as he continues to experience regression. If so, this may become the current status quo.

Emmett has been refusing to wear his underpants today and so that has been tons of fun. I don’t know if he’s feeling ok right now but he isn’t running a fever at the moment.

As the time ticks down towards Gavin’s appointment this afternoon, Lizze has taken ill. She has been down for the better part of the day. This makes going to this appointment a much more complicated process. If she doesn’t feel better soon, I will have to take all the boys with me. That will translate to getting nothing accomplished while I’m there. Instead, I’ll be chasing my little minions around the office.

Elliott’s DSi is broken. It no longer goes to sleep when you shut it. All you hear is Mario screaming something at you until either, the DSi is completely powered off or the battery dies. The problem with doing that is that apparently the power button doesn’t work anymore. I might get it powered down but it might not turn back on. No problem, I bought the extended warranty that covers it from anything Elliott could throw at it. However, the one thing it doesn’t cover is the removal of the serial number sticker from the bottom of the device. Wouldn’t you know it, Elliott pulled that off many months ago.

I called Best Buy and explained the situation and they said what I expected they would. They can’t replace it without the serial number. As luck would have it, unlike other devices, there is no other way to access the serial number without the sticker. Even if I could get the damn thing to turn on, there isn’t a screen or option to display the freaking serial number.

Doesn’t seem very well thought out and is subsequently causing me a great deal of grief.

I know there was more I wanted to vent, however, my brain is going on strike and shutting down. All I have to do is make it through this afternoon and I will good until tomorrow, when I take Gavin back to Akron Children’s Hospital for his 6th IgG infusion.

I love my family but I’m not loving the way things are going at the moment. I’m gonna try and become the Little Engine That Could, and keep telling myself, “I think I can, I think I can”.  🙂

 

 

 

 

0 0 votes
Article Rating
Subscribe
Notify of
guest

This site uses Akismet to reduce spam. Learn how your comment data is processed.

8 Comments
most voted
newest oldest
Inline Feedbacks
View all comments

Definitely consider that that you said. Your favorite justification seemed to be at the web the easiest factor to bear in mind of. I say to you, I definitely get annoyed whilst folks consider worries that they plainly don’t know about. You managed to hit the nail upon the top and also outlined out the whole thing without having side-effects , folks can take a signal. Will likely be back to get more. Thank you

PurpleLogic

A neat plan for all of your devices is to email yourself the serial numbers when you purchase them. You can snap a picture of the serial number on the new DSi, that should help.

Sendz a prayer n Squeezy hug

Sarah

I hope your day gets better…there may the the serial number on the box or call the customer sevice numer for nintendo and I'm sure they would be more than happy to help!

If you bought the extended warranty for the dsi would the serial number be on the paperwork somewhere? just a thought….would it be worth writing to Nintendo if you can find the time and explain about Elliot and what has happened and how important it is for it to be working right for him, they may be able to arrange for it to be repaired or replaced got to be worth a shot. Take care and
just keep swimming 🙂

I plan to replace it in a few weeks with Tax return. The problem is that the serial number on the device has to match the serial number on the receipt. Otherwise, they can't verify that his DSi is the one that we actually bought. It makes sense it's just frustrating. I can however, get refunded for the service plan and receive a prorated amount back.

I think I will do that. Thanks for putting the idea in my head. 🙂

angie

what is lgG infusion?

Lost_and_Tired

Basically, Gavin doesn't have an immune system and the IgG infusion, transfuses donor antibodies into him. This provides him with Immunol protection but he needs this 4 hour procedure done every 30 days for the rest of his life.

You can read more about it here:
https://www.google.com/search?q=Antibody+infusion

8
0
Would love your thoughts, please comment.x
()
x
%d bloggers like this: