This is not a good day. Gavin has been all over the place and is continuing to drive me crazy. During one of his recent meltdowns, Gavin cracked his bed frame. Today however, he finished the job and actually broke it.
For safety reasons, Gavin will once again have a mattress on the floor. No more bed frames in the foreseeable future for him. This pisses me off because now I have to pull the rest of it apart and haul it downstairs and out to the trash. This is one of the big reasons why Gavin’s room has be pretty stripped out. Everything in there just gets destroyed. I don’t know exactly how he broke it today, but I do know that if he hadn’t been kicking it during his meltdowns it wouldn’t be broken right now.
He doesn’t seem to care either or at least he’s not upset by it.
I have to have him to Dr. Reynolds in 2 hours for another consult and medication check. We also need to see if we can figure out what is wrong with him right now. He has been lethargic and doesn’t seem like himself among other things.
I don’t know if we have hit another notch as he continues to experience regression. If so, this may become the current status quo.
Emmett has been refusing to wear his underpants today and so that has been tons of fun. I don’t know if he’s feeling ok right now but he isn’t running a fever at the moment.
As the time ticks down towards Gavin’s appointment this afternoon, Lizze has taken ill. She has been down for the better part of the day. This makes going to this appointment a much more complicated process. If she doesn’t feel better soon, I will have to take all the boys with me. That will translate to getting nothing accomplished while I’m there. Instead, I’ll be chasing my little minions around the office.
Elliott’s DSi is broken. It no longer goes to sleep when you shut it. All you hear is Mario screaming something at you until either, the DSi is completely powered off or the battery dies. The problem with doing that is that apparently the power button doesn’t work anymore. I might get it powered down but it might not turn back on. No problem, I bought the extended warranty that covers it from anything Elliott could throw at it. However, the one thing it doesn’t cover is the removal of the serial number sticker from the bottom of the device. Wouldn’t you know it, Elliott pulled that off many months ago.
I called Best Buy and explained the situation and they said what I expected they would. They can’t replace it without the serial number. As luck would have it, unlike other devices, there is no other way to access the serial number without the sticker. Even if I could get the damn thing to turn on, there isn’t a screen or option to display the freaking serial number.
Doesn’t seem very well thought out and is subsequently causing me a great deal of grief.
I know there was more I wanted to vent, however, my brain is going on strike and shutting down. All I have to do is make it through this afternoon and I will good until tomorrow, when I take Gavin back to Akron Children’s Hospital for his 6th IgG infusion.
I love my family but I’m not loving the way things are going at the moment. I’m gonna try and become the Little Engine That Could, and keep telling myself, “I think I can, I think I can”. 🙂