The road of life

Sometimes it’s easy to get swept up by the raging tides and forget about just how beautiful the ocean can be. The same thing cannot be said about Autism.

In my own personal situation with the Lost and Tired family,  I find myself failing to see the beauty behind the challenge.

It’s so easy for me to get overwhelmed by all the challenges we face,  day in and day out.  Honestly,  the weight or responsibility and be absolutely crushing at times.

So many times,  I’m asked how I manage.

I never really know what to say to that question. In truth,  I really don’t know.

However,  after thinking about this for some time,  I have come to have a better understanding of how and why I keep going.

While the challenges facing the Lost and Tired family may be different than yours,  the driving force behind behind our seemingly never ending strength is, I think, the same as many of yours.

As a parent to 3 special needs boys,  I never imagined the challenges I would face while traveling the road of life with my family. 

This road has many twists and turns as well as blind corners.  These blind corners are some of the toughest to cope with because many times all you have if faith that you’ll safely navigate your family through.

It’s true that all three of my boys are in the Autism Spectrum.  It’s true that some of our boys are dealing with other health issues,  some minor,  while others are more serious. It’s also true that we struggle with behavioral issues just about every single day. 

It seems like we are always,  either going to or coming from an appointment or therapy session.

It’s exhausting,  overwhelming and demoralizing at times.

With all that said,  there is something else you need to know a out my boys. Despite the challenges associated with raising them,  they never cease to amaze me.

My boys are intelligent, loving,  compassionate, creative, generous, courageous, brave, courteous, inventive, genuine, inspiring and most importantly,  well worth the effort that goes into helping them to navigate the road of life. 

I think that’s why I keep going.

As to the how,  I really don’t have a solid answer for that.  I just think that when it comes to my children, I will cross raging ocean waters and climb the highest of mountains for them.  I’ll fight anyone or anything that gets in their way. 

My wife taught me,  that no matter what the odds,  you never give up.  She is the glue that holds the Lost and Tired family together much of the time.

I’m not really that different than anyone else. 

I get overwhelmed, beaten down,  demoralized and sometimes even want to give up. Lost and Tired is a way to basically sum up how I feel much of the time.

As special needs parents,  I think we’re all hero’s, maybe not the conventional type.  However, when the rest of the world would have given up,  we keep pushing forward and never give up on our precious little angels. We are absolutely hero’s to our children.

I think it’s very important that we never lose sight of that.

Just because I choose to write about my adventures doesn’t make me any more amazing than you.

My hat’s off to all of you…..

Cheers.

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Lost_and_Tired

I've read something similar but about Holland.

Your right……it's very much like traveling and not being prepared for it. All of the plans you made are out the window and life goes by at a minute to minute pace at times.

Thanks… very well said. 🙂

Kay

Someone once said that having a baby you discover is Autistic, is a lot like travelling.

You read the books, learn the culture, know the language and, once it's time, you board the plane. But, instead of landing in that lovely and familiar place you spent time learning about, your plane is diverted and lands in a strange country, where the culture is completely alien and no-one speaks your language – then the plane took off, leaving you there to struggle, alone.

Sounds about right to me.

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