I want to talk about something that I know affects myself and my family and I would suspect it affects others as well. We are all on a similar journey. This journey may take us down different roads and our destinations may be different places. However, we all have the same goal in mind. We want to survive the journey know that our kids will be okay. So many times along the way we are met with obstacles. Some are like raging rivers or impossibly high mountains. Some are like vast oceans or deep valley's. It's very easy to get caught up in the frustration and feeling if being overwhelmed. I'm personally,  guilty of that. Sometimes these obstacles can bring out the worst in us, I know it does that…

Everyday, I pick up the boys from school at 3pm on the nose. If I arrive any sooner, there is a line of traffic. As I pull up to the school and the boys are walked out, I open the side door on the van via the power door button. This of course assumes that the van isn't in the shop and the door actually works. I love watching the boys anxiously run to hop into the van. Today, for whatever reason, as Elliott was making his way to the van he was screaming something. What was that something he was screaming, you ask. Like Mel Gibson in the movie Braveheart, Elliott screamed "freedom". I guess he was especially excited today to come home. :-)  Posted from WordPress for Android

I have formed a tribe on Triberr and am looking to expand. Triberr is one of the absolute best ways to network your blog. Basically, it allows a tribe to leverage the combined total of followers to help create and drive traffic to your blog. This doesn't cost anything but a few minutes of your time. I personally feel this is a fantastic way to help spread Awareness. This has worked very well for me and many others. Requirements: You must be an active blogger. You need an active twitter account. You must commit to logging in to share tribal post frequently (daily is preferred) Special Needs Parenting in general is the topic. You must follow me @Lost_and_Tired  (I will need to follow you as well)   If you are interested, please contact…

This is my first video blog. The setup isn't the best, nor is the quality. If I do this again, I'm going to continue to improve upon these things. In this video I talk about Elliott's doctors appointment as well as new Gavin related information. [youtube width="720" height="480"]http://www.youtube.com/watch?v=5al-lh9Rxjs[/youtube]   Important Links:   Ehlers-Danlos syndrome Special Needs Parenting Support Group

This afternoon, Lizze had backed some biscuits for the boys. Emmett refers to them as cinnamon rolls for some reason. Apparently at some point, Emmett and Elliott had both left their biscuits -on the a plate- on Elliott's bedroom floor and walked away. Having found them unguarded, Maggie took advantage of the situation and gobbled them up. Emmett was very mad. I got him on film, explaining -in his own words- what exactly had happened to his beloved biscuit. This first video is him trying to explain what had happened and the second video is Emmett reenacting what had happened. It'd pretty darn funny and cute. If you have had a day like mine, you just might appreciate this :-)   [youtube width="720" height="480"]http://www.youtube.com/watch?v=xav2Y1-j2FI[/youtube]   The reenactment [youtube width="720" height="480"]http://www.youtube.com/watch?v=8F95PwY_M5A[/youtube]:

My goal for tonight is to do a video blog. I have way to much to say and not enough energy to type everything out. At the moment, I'm extremely overwhelmed and really trying not to break down. In hoping to get the kids in bed and then have some time to put this together. Please be patient and stay tuned.... Posted from WordPress for Android

Today is going to be another crazy busy day. Elliott has an appointment this morning for the whole connective tissue thing. After that, we have so running around to do and medications to pick up. Gavin will need picked up from school and right before dinner, we have an appointment with Dr. Reynolds, Gavin's psychiatrist. In-between all of this, Emmett has speech, OT and PT for about an hour and a half. It's kinda funny how I have become so used to this that it really doesn't like we are going to be that busy. The reality is that, this is a really busy day, whether I'm just used to it or not. I guess after awhile, I have just adjusted to this crazy schedule. It has become normal. Posted…

I need some advice for people in the know. Last Friday, Emmett was at the immunologist. She manages Emmett's rare fever disorder. This was just a follow up visit but we left with new concerns. I mentioned a few times how Emmett complains of pain in his joints, mainly his elbows. Something I have noticed is that his hands are almost hot to the touch, even when he's not running a fever I forgot to mention that while we were at the appointment, however, because of Emmett's joint pain, the immunologist is concerned that Emmett may have rheumatoid arthritis. We are waiting for our appointment with the rheumatologist. This has us a bit worried and I'm wondering if anyone has had any experience with juvenile rheumatoid arthritis? My second question…