Isn’t #Autism enough?

I have been suspecting that Emmett is about to begin another fever flare. All the screaming and yelling yesterday and today were sure signs. However, this morning it has been confirmed. He has cold sores appearing on his tongue again.

These are small now, maybe about the size of a pea.

However, over the next day or so they will grow into what you see in the picture below.  These will last about 10 days before starting to go away for a few weeks. You can understand why he would be miserable. I’ve talked to so many people that have just never seen anything like it before.

The large red oval is just one giant cold sore

Pictured below, is just one of dozen or so cold sores that develop when these fevers pop up. I can’t even begin to imagine how bad that hurts. To be completely honest, I can’t believe how well he actually handles it. I would be a giant monster if I had to deal with that.

I wish he wasn’t having to deal with this. I think that in light of all Emmett has to contend with, this simply adds insult to injury. I mean the poor kid is allergic to milk, eggs and lactose, which is in just about everything imaginable. He has severe speech and language delays, courtesy of Autism and this rare fever disorder.

Now the poor guy is being looked at for Juvenile Rheumatoid Arthritis.

How much can one child deal with? Trust me, I realize it could be much worse. Every month when I take Gavin to Oncology for his antibody in fusion, I see just how much worse it can be.

While I’m grateful that we don’t have that to deal with, and my heart goes out to kids and their families, my son is in pain. That’s my reality. As his father, it kills me that he has to suffer like this. The struggles we face with Autism alone are often times more than what we can deal with.

At times like this, I have to ask God, isn’t Autism enough?

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Kathy Kelly RN

Prayers for Emmett, and for you…

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