Nothing ever goes smoothly in the Lost and Tired family. So when Gavin has to be at the Cleveland Clinic for autonomic testing, we’re packing our bags, just in case.
Gavin is already unstable and the drive alone is going to be a challenge. We were in the car for 20 minutes yesterday before his blood pressure suddenly crashed. He got sick to his stomach, pale as a ghost and physically, couldn’t hold himself upright.
On a good day, we can make it to Cleveland in a little over an hour.
Because of Gavin’s sensitivity to everything right now, we are preparing for the worst.
I’m packing a 5 gallon bucket for him to puke in and several changes of clothes for him, ya know, if he misses. Lizze has packed her bags as well because of our concern that he may have to be admitted after the testing. It took 3 days to stabilize him after his last EEG. The difference is that this time we will be 1.5 hours away.
We’re trying to remain positive about this but also realistic as well. I would rather plan for the worst and hope for the best.
Thank you all for your continued thoughts and prayers, we’re gonna need them today.
**Thanks for reading**
-Lost and Tired
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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.