Autonomic Crisis: What’s next

On August 28th, Gavin returns to the Cleveland Clinic for most of the day.  In the morning,  Gavin will have skin biopsies done. My understanding is that they want tissue samples from various places on his body.  Apparently they are able to identify some issues by looking at the nerve cells on a microscopic level.

About 4 hours later,  we will be on the other side of the hospital meeting with Gavin’s autonomic specialist.

We were supposed to originally be there at 4pm this afternoon,  but by waiting, we can get everything done in one day.  Plus,  Bella comes home today and can’t be left alone. 

Making both appointments for the same day just makes more sense.

At this point it’s frustrating,  but the only thing we know is that we don’t have enough information.  Things like the skin biopsies could provide valuable information that could lead to new discoveries..

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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